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From the Desk of NOAH

Offical announcements from NOAH.
  • Albinism on the Air and on the Internet This Week

     

    Three shows devoted to albinism will broadcast this week. On Tuesday, National Geographic Channel "Explorer" series covers the killing of people with albinism in Tanzania. On Wednesday, an Internet radio talk show will discuss Growing Up "White" in a Black Community. On Friday, ABC News magazine "20/20" will air a follow up to their October 2009 hour-long special on albinism.

    ________________________________________

    Tuesday, August 24, 10:00 pm Eastern Time

    National Geographic Channel: EXPLORER

    Explorer follows the astonishing success of a Tanzanian soccer team that consists mostly of people with albinism. These players are noteworthy not only because of their rare genetic condition but because more than 40 albinos have been murdered in Tanzania over the last year. Many others have been attacked with machetes for their body parts for witchdoctors to use in potions to bring wealth and success. http://channel.nationalgeographic.com/series/explorer/all/Overview

    explorer logo 

    ________________________________________

    Wednesday, August 25, 8:00 pm Eastern Time

    EmbraceLifeRadio

    Brandi has stood out in the crowd all of her life. Some say it's due to her family's popularity and hood love. Others say it's her tenacity, charismatic outgoing personality. Maybe it has to do with her growing up with albinism and knowing at an early age that she was different! How do you come to a point of acceptance in a society that judges and sometimes ridicules what's "different?" "I have a condition but I am NOT my condition", says Brandi.

    In addition, Kelsey Thompson, a person with albinism, who serves as the Chair of NOAH's Board of Directors, will educate and inform listeners about albinism and the benefits to being a member of NOAH.

    www.blogtalkradio.com/embraceliferadio or call in at 347-994-1870.

    embraceliferadio

    _______________________________________

    Friday, August 27, 10:00 pm Eastern Time

    ABC News: 20/20

    2020-logo 

    ABC News checks in with those featured last October in a 20/20 follow-up broadcast of on albinism. This is a must see episode! You'll hear the heartening story of how Mariamu Staford, the Tanzanian woman with albinism who lost her arms to vicious attackers, came to America to get prosthetic arms. This story of fierce determination aided by NOAH members, Under the Same Sun and a generous health care company will inspire you.

    mariamu 

    Image courtesy: Rick Guidotti, Positive Exposure

    ________________________________________

    Later This Fall

    MTV True Life

    Keep an eye on your inbox! As soon as it's set, NOAH will announce the air date for an episode of MTV's True Life dedicated to albinism. Camera crews followed two young people with albinism to the 2010 NOAH National Conference in Washington D.C. We've been told that the episode will air later this fall.

    TrueLife

    Stay tuned.....

  • South Texas Pool Party!

    summer04-top 

    Come celebrate our official South Texas Chapter with a pool party!

    Join Us!

    Saturday, June 19th from 4-7pm
    1918 Wavecrest Lane
    Houston, TX 77062

    We will have a light lunch and an ice cream bar so come ready to eat and have some safe fun in the sun! The house where the party will be hosted has a covered patio area and lots of trees, and since we having it in the later part of the day it should be fine for everyone to enjoy. There will also be a baby pool and slip-n-slide for the little ones! If you are interested in volunteering, contact Monica and she'll let you know what is needed. As always feel free to bring friends and family.

    Don't forget your sunscreen, towels, and swim suit! See you there!

    --------------------------------------------------------------------------------

    Questions:

    Contact Monica Blancas
    South Texas Chapter
    832-524-1581
    stxnoahmom@yahoo.com

    --------------------------------------------------------------------------------

    Can you help with a ride? We've got a South Texas Chapter member in need of a ride from Missouri City. If you can help, please email stxnoahmom@yahoo.com.

    summer04-bottom

     

  • NOAH Conference Deadlines!

    3 Important Conference Deadlines Are Upon Us!

    Merchandise, lodging, and registration deadlines are just around the corner!

    1. Last Call for NOAH Merchandise Pre-Order!

    Due to production deadlines, the last day that NOAH can accept merchandise pre-orders is WEDNESDAY, JUNE 16th. Pre-paid orders can be FAXED to NOAH at 800-648-2310.

    logo

    2. NOAH's Room Block is 98% sold!

    Only 8 Days Left to Book Your Room

    Time is running out to book your room at the Crystal Gateway Marriott.  The final booking deadline is TUESDAY, JUNE 22nd for the special conference rate of $149 per night plus tax. With 98% of the reserved rooms sold, the time for procrastination has passed! Call 1-800-266-9432 or use the online reservation system: https://resweb.passkey.com/go/noah2010.

    UPDATE: The hotel has informed NOAH that the conference rate is still available on Thursday (7/15), Friday (7/16), Saturday (7/17) and Sunday (7/18) nights. Other nights may have availability, but at the higher rack rate ($269). Requests for dates outside of this range may result in a false report of the block being completely sold out.

    3. Conference Pre-Registration Deadline is June 30

    Conference registrations MUST be received no later than WEDNESDAY, JUNE 30th in order to receive the pre-registration price. Onsite registration fees begin at $275 for adults, so don't delay, register today!

  • Celebrate Summer with NH NOAH!

    WHEN:     Sunday June 13th at 12:00pm

    WHERE:    Thomas Family Home
                     279 Fremont Road
                     Sandown, NH 03873

    WHAT:      Summer Cookout Fun!

    The Thomas family is hosting a NOAH families summer BBQ.  They will provide hamburgers, hotdogs and lemonade.  Please bring a dish to share and your bathing suit!

    RSVP by Monday, June 7th to the Thomas Family at btt1@comcast.net or Tricia Roy at tnd33@comcast.net .

    sunlotion

  • SC NOAH Day at the Zoo Saturday May 22nd!

    j0280935

    Join area members of the albinism community for a fun day at the zoo!

    NOAH at the Zoo!
    Riverbanks Zoo in Columbia, SC
    May 22, 2010
    10:30 a.m at the Kenya Cafe
    Please RSVP by May 21 to Holly at
    Holligator81@Yahoo.com.

    Zoo information:
    500 Wildlife Parkway, Columbia, SC 29210
    803.779.8717 ~http://www.riverbanks.org/ 

    Hope to see you there!

  • NOAH 2010 Conference Registration is OPEN!

     

    logo

    NOAH’s 13th National Conference
    July 15 – 18, 2010

    Attending NOAH’s 13th National Conference is as easy as 1….2…..3!

    Registration packets were mailed to current NOAH members the week of April 5th, but an electronic version is available online NOW!

    1. REGISTER WITH NOAH

    All conference attendees are required to register for the event with NOAH. Registration should be completed via postal mail, and sent with payment to:

    NOAH
    PO Box 959
    E. Hampstead, NH 03826

     

    2. RESERVE YOUR ROOM

    When making your conference plans, be sure to reserve your room at the Crystal Gateway Marriott.


    Crystal Gateway Marriott
    1700 Jefferson Davis Highway
    Arlington, Virginia 22202

     

    3. MAKE YOUR TRAVEL PLANS

    The Crystal Gateway Marriott is most easily accessible from Reagan National Airport, and is within driving distance from much of the East Coast! The next NOAH conference isn’t until 2012, so don’t miss it!!!!

    WE HOPE TO SEE YOU IN JULY!

    Uniting the Albinism Community Theme Art

  • Albinism Community Survey

    What is life really like in the albinism community?

    This is your chance to provide insight based on your personal experience. To learn more about the albinism community, NOAH has compiled a series of questions about children and adults living with albinism.

    Questions include topics such as accommodations used in school and assistive technologies used in the workplace; education levels and careers; demographic information such as age, race and marital status as well as the modes of transportation people with albinism use.

    NOAH will share the results of this survey with the albinism community online, at the national conference this July in Washington, D.C., and in a future issue of Albinism InSight.

    The survey will only be available until March 31, 2010, so please take a few minutes to complete the online survey.

    No one can tell it like you can so we hope you will take this opportunity to share your knowledge! Your help in this project is greatly appreciated.

    NOAH

  • NOAH’s 2010 Bowl-a-thon ~ It’s Not Too Late!

    Find an Event Near You or Plan Your Own!

    Too Busy? You can still make a difference by making a contribution to your local team. No amount is too small! Together we can help keep NOAH Rolling!

    sydney4

    Get the latest team listings/information at http://www.events.org/noah

    ARIZONA
    Monday, February 15, 2010
    6:30 - 8:30 PM
    Tucson Bowls
    7020 E. 21st Street
    Tucson, AZ
    RSVP: Andrea at aarena02@yahoo.com!

    ILLINOIS
    Team Adamo
    Tivoli Lanes
    938 Warren Ave
    Downers Grove, IL
    Saturday, February 20, 2010
    1:00 - 3:30 pm
    RSVP: Sheila at 630.420.6909 or sadamo@albinism.org

    TEAM MCGOWAN
    IC Bowling Alley
    Immaculate Conception School
    7263 W. Talcott Ave
    Chicago, IL 60656
    Saturday, March 6, 2010
    7:00 - 11:00 pm
    RSVP: Mike at 773.763.5571 or president@albinism.org

    PUB TRIVIA NIGHT
    The Celtic Knot
    Saturday February 20, 2010
    7:00 pm
    626 Church St, Evanston, IL; CTA Purple Line (Davis St.)
    RSVP: Kelsey at kthompson@albinism.org

    KANSAS
    KANSAS CITY BOWLS
    Saturday, February 20, 2010
    1:00 - 3:00 pm
    College Lanes
    10201 College Blvd
    (69 & College)
    Overland Park, KS
    913-451-4799
    RSVP: kc@albinism.org

    LOUISIANA
    OWEN’S BOWLING BUDDIES
    Sunday, Feb 21, 2010

    2:00 PM
    Thunder Bowling Alley
    Thibodaux, LA
    RSVP:
    christinemb689@msn.com

    MASSACHUSETTS
    BOSTON AREA
    Join Team Kelly
    Saturday, February 20, 2010
    1:00 - 4:00 pm
    Lucky Strikes (Jillian’s)
    Ipswich St
    Boston, MA
    Please RSVP if you can join us, jodi.kelly@verizon.net!

    Norwood Bowl-a-thon
    Join Team Bunker!
    Saturday, February 20, 2010
    1:00 pm
    Norwood Sport Center
    65 Cottage St East
    Norwood, MA 02062
    Pizza to follow at Papa Ginos!
    Please RSVP if you can join us, susan.bunker@yahoo.com!

    MICHIGAN
    ThunderBird Lanes
    400 W Maple Road
    Troy, MI 48084
    http://bowlthunderbird.com/
    Saturday, February 20, 2010
    1:30 - 3:30 pm
    Cost $10 per person for 2 games, shoes, pizza, pop. Additional donation to NOAH requested but not necessary.
    RSVP: kp15@chrysler.com by Feb 10

    MINNESOTA
    Twin Cities Bowl
    Saturday, February 20, 2010
    3:00pm
    Southtown Lanes
    Bloomington, MN
    RSVP: Sue at 952-830-1515 or gsmckinley@comcast.net!

    NEW YORK
    BROOKLYN BOWL

    Saturday, February 20, 2010
    12:30 - 3:00 pm
    (bowling starts at 1:00 pm)
    http://www.brooklynbowl.com/
    81 Wythe Avenue and North 11 Street; L train to Bedford Avenue - 1st stop in Brooklyn. Free street parking.

    *Families welcome!
    *50/50 Raffle and Fabulous Prizes!!!
    *$30 gets you 2 hours of bowling (includes shoes) and a spread of yummy sandwiches and snacks from “Blue Ribbon”. Additionally, a full menu of food and drink are available. (including six point beers - yum).
    *RSVP by Feb 10th to Brooke at info@BrookeFox.com

    Long Island BOWLS
    Hosted by Carol and Daniel Carley
    Saturday, March 6, 2010
    12:00 - 2:00 pm
    RVC Lanes
    100 Maple Avenue
    Rockville Centre NY 11570
    $20 a person.  Includes bowling, shoes and a little something to eat.
    RSVP: to 516-766-2489 or ccarley@albinism.org

    OHIO
    Cleveland Area Bowl-a-thon!
    Sunday, February 21, 2010
    1:00 pm
    North Woods Lanes
    10435 Valley View Road
    Macedonia, Ohio 44056
    330-659-4085
    www.northwoodslanes.com
    RSVP: Renee at drjtpiper@aol.com

    PENNSYLVANIA
    Philadelphia Area Bowl-a-thon!

    Saturday, February 27, 2010
    1:00 to 3:30 pm
    Facenda Whitaker Lanes
    2912 Swede Road
    Norristown, PA 19401
    (near King of Prussia, PA)
    RSVP: Pam at 610-574-8905 or pmcgonigle@albinism.org by Monday, February 15th

    SCRANTON Jeopardy Game Day!
    Sunday, March 7, 2010
    2:00 to 4:00 pm
    Marvelous Muggs
    20 Montage Mountain Road
    Scranton, PA 18507
    www.marvelousmuggs.com
    Games and sweet treats for ALL!
    RSVP:
    mcampbell@albinism.org

    SOUTH DAKOTA
    ABERDEEN
    Sunday, February 21, 2010
    5:00 - 8:00 pm
    Village Bowl
    1314 8th Avenue Northwest
    Aberdeen, SD 57401
    http://www.thevillagebowl.com/
    RSVP: Kelli Meister at 605-216-4382 or rkmeister@nvc.net

    SIOUX FALLS AREA
    Saturday, February 20, 2010
    1:30 - 5:30 pm
    Ten Pin Alley
    I-90 to Exit 387
    Hartford, SD 57033
    Pizza, Pop, Bowling, Wii Bowling, and Raffles!
    Childcare provided on site.
    RSVP: Samantha Rinder at 759-6153 or SLR0831@AOL.COM

    TENNESSEE
    Team Tennessee

    Saturday, February 13, 2010
    6:00 pm
    Strike N Spare at Hillwood Circus World
    3710 Annex Ave
    Nashville, TN 37209
    http://www.strikeandsparebowling.com.
    RSVP: akwright04@yahoo.com

    TEXAS
    Hurst Lanes
    720 West Pipeline Road
    Hurst, TX 76053
    Saturday, February 20, 2010
    2:00 - 4:00 pm
    RSVP: noah.ntx@albinism.org

    Frisco - Strikz
    8789 Lebanon Rd
    Frisco, TX 75034
    Sunday, February 21, 2010
    4:00 - 6 pm
    RSVP: gibsons@friscoisd.org

    Houston -Armadillo Lanes
    10055 Fuqua
    Houston, TX 77089
    Saturday, February 20, 2010
    1:00 - 4:00 pm
    RSVP: stxnoahmom@yahoo.com

    Ennis-All Star Bowl
    2302 West Ennis Ave
    Ennis, TX 75119
    Sunday, February 21, 2010
    2:00 pm
    RSVP: carolina-montoya@att.net

    Austin - Highland Lanes
    8909 Burnet Road
    Austin, TX 78757
    Saturday, February 20, 2010
    1:00pm - 3:00 pm
    RSVP: kathi.zuiga@comcast.net

    San Antonio - University Bowl
    12332 IH-10 West at DeZavala
    San Antonio, TX 78230
    Sunday, February 28, 2010
    2:00 - 4:00 pm
    RSVP: aarena02@yahoo.com

  • Join iGive for FREE ~ Earn Donations for NOAH

    iGive is running a special promotion through 11:59am CST Thursday January 21st.

    This promotion is a race to 5,000 new iGive members. For each person who joins iGive using the special link and does just one qualified web search before noon Thursday, iGive will give NOAH a dollar (up until 5,000 new members across all causes has joined).  No purchase necessary.

    Additionally, if after joining and conducting your first search, if you search more (or buy something at an iGive store) you’ll earn even more money for NOAH.  Right now, iGive is donating a special $.02 per search and a bonus $5 for your first purchase plus the usual percentage.

    http://www.igive.com/welcome/warm_reg_promo.cfm?m=425926

    So help spread the word and earn cool cash for NOAH!

    iGive is a free service which enables members to earn money for their favorite cause whenever they make an online purchase or search the web.

  • DC NOAH Holiday Gathering Sunday December 13th

    Hosted by the DuBois Family in Arlington, VA

    Near the Pentagon Metro and the Ballston Metro ~ pick-ups can be arranged

    Join us Sunday December 13th - from 4pm-6pm

    We'll have chili (veggie and meat), a ham, and a variety of beverages.  You are welcome to bring a side dish or a dessert - but it's not necessary.  We'd really just like to see everyone!

    Tanzania Collection: We will be collecting hats with brims, sunscreen, sunglasses and lightweight long-sleeve shirts for people in Tanzania.  Also, our neighborhood is having a bonfire/caroling event that night at 7pm -- which everyone is welcome to stay for - it is always lots of fun.

    Please email Susan at susan.dubois@uspto.gov to RSVP or for more information. Please let us know that you’ll be joining us, along with how many adults/kids. 

    MCj04362300000[1] 

  • Hurry! Time is Running Out to Book Your Cabin on the NOAH Cruise!

     

    j0406388

    Go Cruisin' with NOAH March 13-20, 2010!

    Join NOAH on the first ever NOAH Cruise, the first of its kind vacation opportunity for the albinism community. March 13-20, 2010, you can go cruisin' with NOAH! Cruises International is offering a fun 7-night island treasures & ancient temples cruise aboard the MSC Poesia departing from Ft. Lauderdale, FL. A fun excursion, with kids 17 and under cruising for FREE, this vacation doubles as a fundraising opportunity for NOAH- NOAH can earn a cool $2,000 if friends of NOAH book just 10 cabins for this cruise. For more details, including cabin prices and reservations, check out this special cruise flyer. Final payment must be arranged by December 18th for NOAH to receive credit.

  • South Texas Holiday Celebration

    You’re Invited! Join Us Saturday, December 12th

    Heights Library
    1302 Heights Blvd
    Houston, TX 77008
    832-393-1810
    http://www.hpl.lib.tx.us/heights-neighborhood-library

    3:30pm Potluck/Social Time
    6:00pm Lights in the Heights

    Join us for good food, good friends, and fun, with our holiday potluck and group walk through “Lights in the Heights”.

    Check it out at http://www.woodland-heights.org/Events/LITH
    RSVP/Questions: Email stxnoahmom@yahoo.com or call 800-473-2310.

    j0439774

  • North Texas Holiday Potluck Party

    Saturday - December 12, 2009
    12pm to 3pm

    Frazier Residence
    4824 Crumbcake Drive
    Keller, TX 76244

    Please RSVP to Cyd at NOAH.NTX@albinism.org

    Bring a favorite dish to share, and join in for some good food, great holiday fun, and socializing.

    MCj04362300000[1]

  • Northern Illinois Holiday Celebration Sunday December 13th

    Celebrate the Holidays with NI NOAH!

    WHEN:     Sunday December 13th from 1:00-5:00pm

    WHERE:    LaGrange Park District, 536 East Avenue,  La Grange, IL ~ 708-352–1762

    WHAT:      Holiday Fun for ALL Ages!

    • Social and fun activities for adults
    • Gymnasium for introduction to goal ball
    • Indoor play area for young children
    • Fun jump to keep the kids entertained
    • Optional grab bag gift swap (under $10)
    • Bring a snack to share and join us for some holiday fun!

    Pam Redding, World Sports Chicago’s Director of Paralymics and Disability Sports will discuss goal ball and other sports opportunities for the visually impaired of all ages.

    Please RSVP by December 6th to Michelle at michelleoconnor@comcast.net

    Include the ages of anyone interested in playing goal ball

    MCj04362300000[1]

  • Houston Area Member Dinner - November 14, 2009

    HURRY! REGISTER BY MONDAY NOVEMBER 9TH

    Join NOAH’s Board of Directors and area friends of NOAH for this celebratory evening of good food, friends and fun. Learn how you can become involved in the new South Texas NOAH Group and hear more about the national conference to be held in Washington, D.C. in July 2010. Thanks to a generous donation, we’re able to offer amazing, discounted dinner rates!

    When:    Saturday, November 14, 2009
                     Socializing and Appetizers at 5:30pm
                     Dinner at 6:30pm
    Where:   Italiano’s Restaurant
                     217 FM 1960 Bypass Rd E.
                     Humble, TX 77338
    Cost:     Member rates: $15.00 adults ~ $5.00 kids 12 and younger
                   Non-member rates: $27.50 adults ~ $12.50 kids 12 and younger
                   Not a member yet?
    Join today or send your dues along with your dinner registration.
                   Price includes appetizer, entrée, dessert, beverage, tax, and gratuity   

    Delicious Family-Style Meal: Scrumptious appetizers include fried mozzarella, roasted ravioli, and fried mushrooms. Family-style dinner includes house salad, fresh made garlic knot rolls, chicken marsala, shrimp scampi, homemade lasagna, and penne pomodoro with fresh vegetables. Guests will also enjoy the delectable dessert table with four different cakes, plus choice of non-alcoholic beverage (coffee, tea, or soda). Download the registration form and register by Monday November 9th.

    noahstexas

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