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March 2009 - Posts
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Every year the Tillmans work their magic with photos set to music and video clips. Here's the first offering for the 2009 HPS Conference - lots of familiar faces!
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Congradulations to Karen and her team of walkers/fundraisers that participated in The Human Race in Greensboro, N.C.
I'm sure Tommy took pics so when I get some, I'll post them.
The team raised more than $2,000 for the HPS Network! Wooo Hoooo!
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If any of these items belong to you - call the HPS Network New York office. If anyone could help pass this on to the folks that came from Puerto Rico, I'd appreciate it.
16th Annual HPS Network Conference Lost and Found
Item #1 - Gray zippered hooded sweatshirt with glasses in the pocket
Item #2 – Black Leather Jacket with Puerto Rico Lanyard and key in pocket
Item #3 – Tortoise Shell Glasses in hard brown case
Item #4 – Royal Blue Children’s Back Pack
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How do you know that you have influence in the world? When you can look at three grown men, one of them an ex-New York City cop, tell them that you want them to dress up like superheroes - tights and all - and dance around the room in front of 260 odd people -- and they just agree. Wow! Donna certianly does have some super powers! She also did a great job finding the right superhero music for each super hero to strutt their stuff.Superman, Batman and Spiderman joined us for dinner!
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We split conference attendees into three groups - adults with HPS, parents of children with HPS and spouses, family and friends of those that have HPS. This is the session for those with HPS. It gives everyone an opportunity to ask questions or share concerns they might be afraid to share with the other groups. We HPS'ers have issues that sometimes we don't share in front of family. Likewise, sometimes our family and parents need their own private place to share concerns and ask questions.
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Mervin and Ashley hold up one HPS gene, and one unaffected gene - they are carriers in this game!
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Here Dr. Brilliant uses pool noodles to illustrate autosomal recessive inheritance patterns. It was a great way to teach about different genetic inheritance patterns. Very easy to see and understand - great idea!!!! The pool noodles represent genes - one color the HPS genes and one color the same gene without an HPS mutation.
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