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• HPS Network forced to cancel participation in Digestive Disease Week

  I am very sorry to report that we’ve had to pull out of Digestive Disease Week this year. Last year was our first time to attend this amazing event, and it was long overdue. Although severe bowel issues only affect between 15 to 20 percent of those with... Posted Feb 10 2010, 08:57 PM by Living on the frontlines Filed under: HPS Network News, HPS Fundraising

• HPS Network forced to cancel participation in Digestive Disease Week

  I am very sorry to report that we’ve had to pull out of Digestive Disease Week this year. Last year was our first time to attend this amazing event, and it was long overdue. Although severe bowel issues only affect between 15 to 20 percent of those with... Posted Feb 10 2010, 08:57 PM by Living on the frontlines Filed under: HPS Network News, HPS Fundraising

• Come Zumba for the Cure!

  Zumba for HPS! Friday, March 5, 2010 8:00pm to Midnight Li Greci’s Staaten, 697 Forest Ave. Staten Island Entrance Fee: $20.00 donation RSVP required Dance for the Cure! Come out and enjoy an evening of Zumba for HPS on Friday, March 5th at Li Greci’s... Posted Feb 09 2010, 06:26 PM by Living on the frontlines Filed under: HPS Fundraising

• Fundraising idea - sponsor a Boston Market night

  I was doing some research for something else, and stumbled upon this fundraising opportunity. If you've got a wide circle of friends and family - maybe a large church community etc. - this might be a relatively simple fundraiser. Sponsor a Boston... Posted Feb 01 2010, 06:12 PM by Living on the frontlines Filed under: HPS Fundraising

• Do you work for Walgreens?

  I am working on a grant application to the Walgreens corporate foundation. While it's not required that we have an employee listed on our application - there is a space for it and the Foundation makes it clear they prefer charities that involve their... Posted Feb 01 2010, 06:01 PM by Living on the frontlines Filed under: HPS Fundraising

• Goodsearch is making it easier to help the HPS Network

  Now it's even easier to help raise money for the HPS Network. For several years now HPS Network supporters have been able to help raise money by simply using the search engine at www.goodsearch.com . The Network earns a penny for every search, and... Posted Feb 01 2010, 05:48 PM by Living on the frontlines Filed under: HPS Fundraising

• Say a few prayers and cross your fingers and toes

  A few days ago I sent off a grant request to the Rickie Martin Foundation. The request is a long shot. The HPS Network, technically, doesn't fall under the sort of thing the foundation funds. Their special interest (and a worthy one) is in preventing... Posted Feb 01 2010, 05:42 PM by Living on the frontlines Filed under: HPS Network News, HPS Fundraising

• Help the HPS Network win some money - it's a race - timing is everything

  I'm copying this information from www.igive.com . Anyone who could pass this along and help us we'd greatly appreciate it. Hi Heather, Last month, we tried something new to help Hermansky-Pudlak Syndrome Network and all the causes listed at iGive... Posted Jan 20 2010, 04:20 PM by Living on the frontlines Filed under: HPS Fundraising

• More photos from the Christmas concert

  Posted Dec 16 2009, 08:12 PM by Living on the frontlines Filed under: HPS Fundraising, photos

• Help the HPS Network earn $5,000 in the next 24 hours

  Our friends at iGive are having a membership push for the next 24 hours - until midnight central time tomorrow Dec. 17th. If you don't already belong to iGive, go to their site at the link below, join, and do a single search using their search engine... Posted Dec 16 2009, 03:25 PM by Living on the frontlines Filed under: HPS Fundraising

• Ashley's solo

  Posted Dec 13 2009, 01:25 AM by Living on the frontlines Filed under: HPS Fundraising

• Photos from the performance

  I took photos from both performances and now they're all mixed up. No matter - here's a look at our stars! Posted Dec 12 2009, 03:55 PM by Living on the frontlines Filed under: HPS Fundraising, photos

• Our supporters

  I know these photos are blurry. It was really hard to get good photos in a place that was so dark and yet, so light - and where the lighting changed so quickly. Many of the photos of the concert didn't turn out well. But, even though these are blurry... Posted Dec 12 2009, 03:19 PM by Living on the frontlines Filed under: HPS Fundraising, photos

• Concert goers begin to arrive

  These are images of the crowd in the lobby gathering about a half hour before we opened the doors. I was on the table in front of the main doors. It was hard keeping the crowds back! Some had come early to ensure a good seat and they were irritated we... Posted Dec 10 2009, 05:49 PM by Living on the frontlines Filed under: HPS Fundraising, photos

• Setting up the Friday night craft tables

  Thanks to everyone who sent the HPS Network crafts to sell over the last year. We made large photos of everyone for whom we had a nice head shot and put your photos in a frame next to your work. I think we made around $450 on crafts - $210 of which came... Posted Dec 08 2009, 11:08 PM by Living on the frontlines Filed under: HPS Fundraising, photos