|
Browse by Tags
All Tags » HPS Fundraising ( RSS)
-
|
If you’ve ever toyed with the idea of doing your own Hermansky-Pudlak Syndrome fundraiser, now would be a good time. We’ve had a very busy spring and summer at the HPS Network. We’ve attended multiple medical meetings, spoken to thousands of researchers...
|
-
|
Regular readers have seen this egg before. I'm posting it because we've been talking about how people with low vision can indeed do art on the HPS adults listserv lately. I don't have a lot of artwork around as I can't paint as much as...
|
-
|
Regular readers might notice that the ad that regularly appears in the top right corner of the blog has disappeared. This evening I got a letter from Google saying that my Google ad account had been shut down. Apparently they detected some sort of thing...
|
-
|
Kudos to Heather and her team in Kentucky that raised more than $1,000 for the HPS Network with a rummage sale. Heather has two sons with HPS. Way to go Kentucky!
|
-
|
I just wanted to send out a great big BRAVO! to Angels in Voice (Candice and Crystal) on their fundraiser last week. They gave a concert (how I wish I could have been there in person) and raised more than $2,500 for the HPS Network. Way to go! Thank you...
|
-
|
For those that live in Kentucky, come out and support the HPS Network May 31st at the National Guard in Owensboro. There will be a rummage sale with lots and lots of cool “stuff” for great prices! All proceeds will benefit the Hermansky-Pudlak Syndrome...
|
-
|
The biannual DelVecchio Garage Sale, a.k.a. HPS flea market was held this past weekend. Marie says they made $795, roughly. That's an aweful lot of nickles, dimes and quarters! Way to go DelVecchio family! Marie has been doing this fundraiser for...
|
-
|
Congradulations and thank you to the Tillmans! Some of you that were at conference will remember that the Tillmans were asking a number of questions and taking some video. We intend to use some of the video they shot on the HPS Web site eventually - but...
|
-
|
Regular blog readers have heard me mention Janet, an HPS’er who is currently seeking a lung transplant. Lung transplant surgery is very, very expensive and there are a number of expenses that don’t get covered by insurance. It’s often necessary, for example...
|
-
|
Let's give a big shout out to the Springfield Falcons Hockey Team in Mass. They held two HPS Awareness Nights (and gave HPS a portion of ticket sales) - one in March and one in April. Pictured here are Sara, her little girl Christina, Ashley and Carmen...
|
-
|
As many of you know the HPS Network is one of the charities you can support at http://www.goodsearch.com/ . Currently Goodsearch is having a video contest. The Tillmans put together the following entry from some video clips we were shooting for later...
|
-
|
Regular readers will notice a new feature on the right side of the page. I've added a Google Donate button. (Thanks to Tim from NOAH who helped me with the code.) Instead of having to go to the HPS Network Web site to donate online, you can now make...
|
-
|
These little bears were donated to the Network around Christmas time by our printer/tech guy. He thought we could sell them with the CDs for a cute gift. We had some left over so we sold them at conference. I think there are a few left - they're little...
|
-
|
The following was a handout I'd prepared for our development meeting Friday afternoon. It's just some basic fundraising ideas. In the chaos of getting to the hotel, my handouts went missing. So, here it is for anyone that wants it. Consider it...
|
-
|
Team HPS raised more than $2,500 for HPS - the total isn't completely in yet.
|
More Posts Next page »
|
|
|