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• coping
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• One of those days

  Today wasn't exactly the most productive day on record. I felt so tired today, and I'm not sure why. By three in the afternoon I gave up and took a long nap. This evening I have another headache, although not as severe as the one a few days ago... Posted Feb 12 2010, 02:01 AM by Living on the frontlines Filed under: Personal Health

• Frustration and guilt – Health update

  Notice: Not for the squeamish The past three days have been very frustrating. I’ve been so fatigued and having a lot of diarrhea. Today I have these sores in my mouth on my tongue and on the inside of my right cheek going down to the gum. This evening... Posted Jan 31 2010, 11:53 PM by Living on the frontlines Filed under: Personal Health, Personal life

• Hack hack

  You know you’ve got a cough when your neighbor, who lives across the hall, knocks on your door because she can hear you coughing and is worried about horrible you sound. Do I know how to make a first impression on a new pulmonogist or what? Tomorrow I... Posted Jan 05 2010, 09:22 PM by Living on the frontlines Filed under: Personal Health

• The drug trial – the final chapter

  It’s been a few weeks since this happened. I wasn’t as worried as I usually am about recording it “in the moment” because the film crew came to visit and filmed the entire thing. Our trial of Pirfenidone came to an end and so after three years, I had... Posted Nov 09 2009, 04:49 PM by Living on the frontlines Filed under: Personal Health, coping, Personal life

• It’s been a year

  Oct. 15th was a big anniversary – it’s now been a year since I left work. A year ago I was such a mess that looking back it’s hard to imagine that the person I am today, and the person I was then, are one and the same. A year ago it was hard to blog about... Posted Nov 02 2009, 09:27 PM by Living on the frontlines Filed under: Personal Health, coping, Personal life

• Be careful what you ask for

  I was wanting a way to dampen the munchies - and God took care of it. Grin! I don't know what's up, but this morning I woke up with sores all inside my mouth that hurt like *(^(^(^., Tylenol didn't do it. I had to break out the big guns. I... Posted Jul 27 2009, 04:20 PM by Living on the frontlines Filed under: Personal Health

• Help - I need a cure for the munchies

  I don't know what's wrong with me. I have a very bad case of the munchies and have had for about two days now. This is bad, bad - very bad. I don't know why. I don't feel stressed, or depressed or any of the normal emotional things that... Posted Jul 26 2009, 11:18 PM by Living on the frontlines Filed under: Personal Health, coping

• Ostomy woes

  And another health update......the ulcer under my stoma that was the size of a quarter before I traveled is now a long shape about the size of my pinkie finger. It now doesn't just ooze blood - it bleeds actively making life a real challenge right... Posted Jul 24 2009, 02:35 PM by Living on the frontlines Filed under: Personal Health

• Home sweet home

  I do love traveling, but I also love coming home. I'm now home from Boston with lots of pics - I'll be driving everyone nuts with photography for a good long while now. Evil Grin! My trip home was like something out of the movie, Planes Trains... Posted Jul 21 2009, 02:32 AM by Living on the frontlines Filed under: Personal Health, Personal life

• Health Update: it's the little things that annoy me

  Here's just another little health update for my records. This week my acid reflux has been acting up. I"m not sure why. Okay, the night I ate Indian food might be easily explained, but otherwise because of the reflux I've been sticking to... Posted Jul 02 2009, 11:08 PM by Living on the frontlines Filed under: Personal Health

• Health Update – I don’t like the heat!

  This is just a brief health update. Some of you might have noticed I haven’t blogged as much lately – pics are easier to post. This past week I’ve felt so drained. I can’t seem to sleep enough. It’s as though I force myself through the day getting done... Posted Jun 29 2009, 05:37 PM by Living on the frontlines Filed under: Personal Health

• It's hot...really hot....and I don't like hot

  I've been here, just not posting the last two days. I have these ongoing fatigue issues, and it seems to go in cycles - I have a string of good days and I go like gangbusters, and then it's as if this invisible brick wall comes down in front of... Posted Jun 24 2009, 05:20 PM by Living on the frontlines Filed under: Personal Health, Personal life

• A bit queasy

  It's about 2:00 am and I'm going to force myself to go to bed now. I woke up about 4:00 am yesterday throwing up and feeling feverish. By morning, oddly enough, my throat and armpits hurt (weird) and I have this huge sty in one eye (also very... Posted Jun 19 2009, 03:32 AM by Living on the frontlines Filed under: Personal Health

• Health Update: I think I jinxed it

  I just wrote an e-mail to my local doc telling him I was sending over my NIH results etc. and explaining why I haven't been in to see him. I told him I was doing great. So, I think the universe decided to punish me for thinking I'm doing really... Posted May 29 2009, 06:52 PM by Living on the frontlines Filed under: Personal Health

• Health Update – ewwhhh

  Disclaimer: I try to be honest about my HPS life – but sometimes it requires being….well, let’s just say don’t read this if you have a weak stomach or are eating. I’ve been doing so great these past few weeks. I was very worried about how my stamina would... Posted May 28 2009, 01:02 AM by Living on the frontlines Filed under: Personal Health