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On my recent journey, one of my most prized posessions was distroyed. Delta Airlines smashed my camera. So far I've had little satisfaction on the issue. They almost seem to be intentionally not responding. Usually when I fly from Kansas City to New...
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These are a few photos from this past weekend. My good friend Tina J and Karen (who now lives in San Diego, but was visiting for the weekend) celebrated their birthdays. Tina B (yes, I know a lot of Tinas) also had the grand opening First Friday of her...
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These are a few photos from this past weekend. My good friend Tina J and Karen (who now lives in San Diego, but was visiting for the weekend) celebrated their birthdays. Tina B (yes, I know a lot of Tinas) also had the grand opening First Friday of her...
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People with albinism - indeed people with any sort of issue that sets them apart from others in any way - can understand how great it is to get together with others who share your experiences. For those of us with HPS, this is especially true. We look...
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Notice: Not for the squeamish The past three days have been very frustrating. I’ve been so fatigued and having a lot of diarrhea. Today I have these sores in my mouth on my tongue and on the inside of my right cheek going down to the gum. This evening...
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I feel like I’ve been neglecting the blog. I’ve been very busy working on HPS projects and so it’s distracted me from self reflection. I have this growing stack of grown-up things to do on my desk that I’ve been avoiding. I dread these sorts of things...
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Today was a frustrating day. My computer was experiencing “technical difficulties.” I still don’t know why, or whether any of the tricks I tried actually fixed anything, or whether these difficulties will return. As Chris put it, these computers are like...
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These are photos from the jam session at Echo and Karen's house at New Year's Eve. The big black dog is Ashley, a long lost friend as much as any of the human guests. Ashley is my friend Tina's retired guide dog. The family that has him now...
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We interrupt this blog for a completely self-serving advertisement. Usually I donate all the funds from any artwork I sell to the HPS Network. This time, however, I'm selling some artwork for me - however its for the Network indirectly. Some of us...
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We interrupt this blog for a completely self-serving advertisement. Usually I donate all the funds from any artwork I sell to the HPS Network. This time, however, I'm selling some artwork for me - however its for the Network indirectly. Some of us...
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Years ago a work friend of mine went on a mission trip to Haiti. While there they did some work at an orphanage in the capital city. She came home with photos to show me of a little three-year-old girl there with albinism. The girl had been abandoned...
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Since it’s the first of the year, I wanted to write something inspiring to kick off 2010. Trouble is, I’m not feeling inspired. I’m feeling congested, have a sore throat again, and am coughing so that my ribs hurt now. Try as I might, the words aren’t...
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Don’t get me wrong. I much prefer winter to summer in many ways. I do love the snow. I love the way it looks when it thinly coats the surface of everything making every branch look as though it’s been carefully staged for a Christmas card photo shoot...
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This year New Year’s Eve couldn’t have been more fun. I’ve never been one for the large parties or much drinking, so I was delighted when Linda Ray and Karen invited me over for a New Year’s Eve jam session with a number of their musician friends. Many...
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This is one of my dad's old trains from when he was a boy. Kristen set it up under the Christmas tree. The train is actually older than my dad and had been set up around the Kirkwood family tree for years. It's 67 years old and still works like...
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