March 2009 - Posts

• West Virginia Albinism Family Day Saturday April 4th ~ FREE CONFERENCE!

  Saturday, April 4, 2009 10:00 am—4:00 pm Bridgeport Holiday Inn Bridgeport, WV I-79, exit 119, east Rt. 50   Sessions will include: · Genetics · Low Vision & Children · Research—National Institute of Health (NIH) · WV’s low vision driving bill · Panel discussion · Parenting children Lunch speaker: Mike McGowan, President of NOAH · Lunch will be provided at no charge! · Childcare will be provided for all children 14 years and younger Don’t delay, register today!   For more information contact: Dan Oates WV School for the Blind Outreach Office Office: (304) 822-4883 Cell: (304) 851-5680 Email:doates@access.k12.wv.us Registration is necessary for lunch. To register, complete and return the registration form or visit http://wvsdb2.state.k12.wv.us A Limited number of rooms are available for overnight accommodations for $69 per night. Mention the WV School for the Blind rate. Registration Deadline: March 25, 2009   Presented by WV Schools for the Deaf and the Blind in cooperation with National Organization for Albinism & Hypopigmentation (NOAH) Children’s Vision Rehabilitation Project (CVRP) American Foundation for the Blind (AFB) Posted Mar 23 2009, 11:34 AM by NOAH Administrator with no comments

• LAST CHANCE! NOAH's One of a Kind Experience is Coming to New York!

  YOU WON'T WANT TO MISS IT! DEADLINE EXTENDED! NOAH's 2009 Regional Mini Conference Tour makes its first stop in New York!   New York Area Mini-Conference Saturday, March 21, 2009 8:30am - 4pm Long Island Marriott 101 James Doolittle Boulevard Uniondale, NY 11553 Westbury Station LIRR The Educational Sessions You've Been Waiting For... Albinism Research with David Adams, Ph.D, M.D., assistant clinical investigator in the lab of William Gahl at the National Human Genome Research Institute at the National Institutes of Health Genetics of Albinism with Murray H. Brilliant, Ph.D.,Lindholm Professor of Genetics in the Department of Pediatrics at the University of Arizona College of Medicine Hermansky-Pudlak Syndrome with Donna Appell, RN, President and Founder HPS Network, NOAH's Board of Scientific Advisors National presenters that you want to hear... Top notch education of a national conference presented in an intimate, mini-conference setting ~ an incredible opportunity at a bargain price! Adult member registration only $35, including lunch. ******************** NOAH is committed to making this opportunity available to as many members of the albinism community as possible. Don't let this chance pass you by! Contact NOAH today! Transportation Concerns? We can help to arrange rides from public transportation points in Manhattan. Call or email for more details. A Little Short on Cash? If you're dying to come but can't quite pull together the funds to register, contact NOAH for ideas to make the event possible. (800-473-2310 or info@albinism.org) ******************** Informative sessions and networking opportunities Ask an adult with albinism Parent and Adult discussion groups Network with the albinism community The Greatest Show on Earth for the Children! Let kids be kids enjoying a day at the circus ******************** Registration deadline extended until Tuesday March 10th. ******************** Download the flyer: http://www.albinism.org/publications/2009/pdf/ny_event_flyer.pdf Fax your registration to 800-648-2310 Email info@albinism.org for more details. Posted Mar 07 2009, 04:33 PM by NOAH Administrator with no comments

• North Texas Chapter March Madness Albinism Community Meeting!

  March 22, 2009 WHEN: March 22, 2009 at 3:00 TO 5:00 PM WHERE: Handley Meadowbrook Lion’s Club 6013 Craig Street, Fort Worth, TX 76112 RSVP: Cyd Frazier Phone: (817) 993-0635 E-mail: gccfrazier@yahoo.com Be sure to sign up to bring a March Madness snack to share (hot dogs, buns, chips, potato salad, beverages, condiments, etc).    This month's discussion topics include: Our upcoming mini conference on July 18th My trip to the Low Vision Clinic Please come and join us for socializing, information, and fun.   Thanks once again to the Lion’s Club for their continued generosity in donating their facility for us to meet.   Posted Mar 07 2009, 04:24 PM by NOAH Administrator with no comments

• New York Area Mini-Conference Registration Deadline is TODAY!

  http://www.albinism.org/publications/2009/pdf/ny_event_flyer.pdf New York Area Mini-Conference Saturday, March 21, 2009 8:30am - 4pm Long Island Marriott 101 James Doolittle Boulevard Uniondale, NY 11553 Westbury Station LIRR   The Educational Sessions You’ve Been Waiting For • Albinism Research with David Adams, Ph.D, M.D., assistant clinical investigator in the lab of William Gahl at the National HumanGenome Research Institute at the National Institutes of Health • Genetics of Albinism with Murray H. Brilliant, Ph.D., Lindholm Professor of Genetics in the Department of Pediatrics at the University of Arizona College of Medicine • Hermansky-Pudlak Syndrome with Donna Appell, RN, President and Founder HPS Network, NOAH’s Board of Scientific Advisors Intriguing Panels and Discussion Groups Ask an Adult with Albinism Panel Parent Discussion Group Adult Discussion Group And much more! Fun for Kids! Attendees ages 5 to 17, prepare to the see the “Greatest Show on Earth!”, the Ringling Brothers and Barnum & Bailey Circus at the Nassau Coliseum (just across the street from the hotel)! What could be more fun than an afternoon at the circus with friends old and new from the albinism community? On-site activities for younger children will also be provided. Bring the whole family!   Affordable Registration Fees!* Mini-conference registration includes educational sessions, discussion groups, children’s activities, and lunch. Adults: $35 per attendee 18 & older Children: $25 per child (ages 5- 17) – includes Circus ticket! $10 child (2-4 or not attending the circus) Under age 2 free! *Fees are for current NOAH members. Call for non-member pricing or visit http://store.albinism.org to become a NOAH member today! For complete details, and to register, check out the registration packet http://www.albinism.org/publications/2009/pdf/ny_event_flyer.pdf. Please email info@albinism.org for space availability beyond the March 2nd deadline. Posted Mar 02 2009, 02:21 PM by NOAH Administrator with 1 comment(s)