Chicago Mini-Conference Saturday May 9th, 2009
Due to popular demand, the registration deadline has been extended until Monday May 4th.
Pre-paid registration is required. Credit card payment may be faxed to NOAH at 800.648.2310.
Location
Chicago Bar Association 321 S. Plymouth Ct. 5th Fl. Chicago, IL 60604 United States
Awesome Adult Program
09:30 — 10:00 AM Registration
10:00 — 10:15 AM Welcome, Introductions and NOAH Now – Mike McGowan, NOAH President
10:15 — 10:45 AM National Institutes of Health Protocol – Dr. David Adams, NIH; Kelsey Thompson, NOAH Board of Directors; Donna Appell, RN, NOAH Board of Directors
11:00 — 11:45 AM Genetics of Albinism – Dr. Murray Brilliant, University of Arizona
12:00 — 12:30 PM Hermansky-Pudlak Syndrome (HPS) – Donna Appell, RN, HPS Network and NOAH BOD
12:30 — 01:30 PM Lunch
01:30 — 03:00 PM Discussion Groups – Adults with albinism, Parents of children with albinism
03:00 — 04:00 PM Afternoon Social Hour/Refreshments
Fun for Kids!
Children ages four and younger will enjoy age appropriate, safe activities on site. School aged children will spend the well-chaperoned day at Navy Pier where they will ride the Ferris wheel, play mini golf, have lunch at McDonald's and visit the Chicago Children's Museum. Just a short CTA bus ride from the conference location, what could be more fun than playing and having fun with friends old and new from the albinism community?
Program Check-in: 9:30 AM, Depart: 10:00 AM, Return: 3:00 PM
Getting There!
- Public Transportation – Easy to get to on the CTA and Metra.
- Parking – Parking Garage Rates will be around $30; Some metered and non-metered street parking may be available.
- Nearby Garages – 412 S Dearborn St (Open 6:30 AM — 8:00 PM), 318 South Federal (Open 24 hours; Phone 312-986-5813)
Volunteer with the Kids!
Are you or someone you know Fun? Enthusiastic? Responsible? Love Kids? Yes! Then NOAH may be looking for you! NOAH is seeking a limited number of volunteers to help out with supervision during the mini-conference. If you or your child's vision teacher, aunt, uncle, grandparent, or best friend forever would like to be considered, email info@albinism.org or call 800-473-2310 for more details.
Register Today!
The Chicago mini-conference is the third in a series of regional events across North America in 2009. NOAH is committed to bringing the magical experience of an albinism community gathering to more locations this yea, reaching out to those who might not be able to attend a NOAH conference. It's a jam-packed day featuring top experts in the field, meaningful panels and discussion groups, and the opportunity for kids to be kids within the albinism community. Member registration fees are $25 for attendees ages 5 and up, 4 and under are free. Be a part of the NOAH magic!
Register by Monday, May 4th, 2009. Download the mini-conference flyer.