Browse by Tags

• albinism
• albinism resources
• child development
• cognitive development
• Developmental Milestones
• language development
• low vision
• New Posts
• nystagmus
• Photos
• Resources
• Toys Toys Toys
• Videos
• vision development
• Vision Progress

• Lyra the Songster

  I post a lot of videos of Lyra. I do this not just to entertain, but also to support my overall purpose of starting this site. I’m not sure if they really HELP other parents of children with albinism.?? I hope that for NEW parents of a child with... Posted Sep 26 2008, 10:02 PM by Parent of a Child with Albinism Filed under: albinism, children with albinism, New Posts, Videos

• New Pictures

  Over the last couple of weeks I’ve been borrowing a friend’s Sony Digital SLR camera. It’s AMAZING how easy it is to take good pictures when you have a good camera. It’s been so much fun! I’ve been taking pictures like crazy... Posted Aug 31 2008, 07:30 PM by Parent of a Child with Albinism Filed under: albinism, children with albinism, New Posts, Photos

• Vision Update - 2 years 3 months

  Lyra had an appointment with her pediatric ophthalmologist this month, a check-up that was originally scheduled for the end of September. Several weeks ago, we lost one of the lenses from Lyra’s glasses. After over a week of searching, I gave up... Posted Aug 31 2008, 04:15 AM by Parent of a Child with Albinism Filed under: albinism, children with albinism, New Posts, low vision, Vision Progress, nystagmus

• Resources

  Albinism Information NOAH (The National Organization for Albinism and Hypopigmentation)- An organization where people with albinism, their families and those that work with them can get information, ask questions and share their experiences. Albinism... Posted Aug 15 2008, 09:39 PM by Parent of a Child with Albinism Filed under: albinism resources, albinism, Resources, children with albinism

• Homemade Flashcard Activity

  This was an idea I got from Lyra’s TVI. I took pictures of a variety of toys and objects that Lyra was familiar with or played with regularly. To make them more durable, I taped them to poster board a cut them out. Then I put them into the plastic... Posted Jun 07 2008, 01:16 AM by Parent of a Child with Albinism Filed under: albinism, children with albinism, New Posts, language development, Toys Toys Toys, cognitive development, vision development

• Milestones 1-2 years

  These are some of the milestones Lyra met over this past year. They are not in any particular order. There have been so many! I don’t want to forget them. These are all I could remember. I’ll add more as I think of them. pulls string [...... Posted May 19 2008, 11:12 PM by Parent of a Child with Albinism Filed under: albinism, children with albinism, child development, New Posts, Developmental Milestones