Anyone who has a child currently receiving Early Intervention services that will be turning 3 in less than 6 months, should start asking questions and getting information about the transition process, NOW.   By transition, I mean the process by which a child who has an IFSP and is receiving services through an Infant-Toddler program (IDEA-Part [...]

Lyra has been a busy girl.  These are current IFSP goals that she has met and a whole bunch of other milestones she’s met.   Mommy has been a busy mommy.   I have a ton of updates I need to write about and hopefully I’ll get those posts written over the next few days.  IFSP [...]

This is a video of Lyra with her TVI doing a color sorting/matching activity.  They are using colored bears and boats.  I recently did some Christmas shopping for Lyra and found a similar toy/game.  It also includes cards used for learning to recognize and make patterns.  For more information you can click on the product [...]

Over the last couple of days, Lyra has had this AWESOME new game/activity to play with.  Her TVI brought it with her to her last visit and now we are “trying it out” to see if it is something we would want to buy. See the video above to watch Lyra in action. This game, toy, [...]

I’ve got answers…well, maybe.  : ) Some of you may have noticed the the new Frequently Asked Questions link in my sidebar.  Since I started this blog, I have often received questions, either through comments on posts or my Guestbook, or through email.  I don’t usually respond to those comments I receive by commenting back. I [...]

It’s that time of year. We are seeing fewer nice warm sunny days, which means our children are often spending less time outside.  Because of the cooler weather, our kids will be wearing pants and longer sleeved shirts.  However, even in the winter, when they do go outside, we need to remember to apply sunscreen [...]

Normally Lyra’s TVI and OT come separately.?? Lately they have been coming for visits together to try and work with Lyra outside where she is less familiar with the environment.?? However, the last two Tuesday’s when they have come, it has been raining outside. So, here is a video of their latest visit.?? ©2008 [...]

In Tanzania, a country in east Africa, more than 28 people with albinism, including a 7-month old baby, have been murdered.?? Their body parts are being sold to witchdoctors to be made into potions.?? It is a widespread belief that these potions bring riches and have magical powers. I first started hearing about this unbelievably horrible [...]

Lyra’s early intervention team recently completed her yearly re-evaluation. Lyra is 2 years and 4 months old.?? Her goals are updated at least once every 6 months.?? Here are her current goals for vision, cognitive skills, gross motor, and fine motor.?? Her speech and language goals can be seen in a previous post, HERE. GOALS FOR [...]

I post a lot of videos of Lyra. I do this not just to entertain, but also to support my overall purpose of starting this site. I’m not sure if they really HELP other parents of children with albinism.?? I hope that for NEW parents of a child with albinism, watching these videos gives [...]

As I may have mentioned before, over the last 2 years, writing has sort of become my therapy. I recently had my 4th article published in Albinism Insight.?? The article is about emergent literacy in children with low vision.?? The information can really be applied to ALL children with low vision, not just those with albinism.?? [...]

Recently, our family has been reconnected with the Parents as Teachers program.?? We first participated in the program 5 years ago in a different school district, with Dominick. Parents as Teachers (PAT) is an early childhood parent and family support program serving families throughout pregnancy until their child enters kindergarten, usually age 5.?? Here are the [...]

My husband is currently in the process of transferring this site from one hosting provider to another.   During that process, the site may occasionally be down completely or you may find links not working, pictures missing, and other wacky looking things. Hopefully everything will be looking and functioning properly within a few days. Thanks. 

Over the last couple of weeks I’ve been borrowing a friend’s Sony Digital SLR camera.  It’s AMAZING how easy it is to take good pictures when you have a good camera.  It’s been so much fun!  I’ve been taking pictures like crazy.   Lyra really knows how to ham it up for the camera.