It has been six years since our little girl was diagnosed with OA. Your story brought all the tears and gut wrenching feelings of those first days right back. We actually noticed something was not right at birth.  She was a sleepy baby and was very lethargic.  (no visual stimulation) I don't know about most but from what we could tell she had no visual response until 4-6 months. We like you, tried to dismiss all these feelings. Finally I got the courage to actually say out loud to my husband that I thought something was wrong. We had her seen by a vision specialist at 2 months and the ride went on from there. Some of the thoughts that would bring me to tears were she'll never see a rainbow, and a thought of joy -she'll never climb and get in the cabinets if she can't see them!-At six, she can't see the rainbow so we come inside and draw one and at 2 she could see the cabinets and did try to climb up to get into them. A note to encouragement of all newly diagnosed--your child will be able to function as others in most areas with a little help in some ways. All feelings are God-given don't feel guilty about the highs and the lows, just know God doesn't make mistakes in His creation.

sorry, I posted the Oct 10 response on the wrong comment.  See: Our story begins by twinmamma Sep 8,2007