NOAH AOC

I have now been driving for two years, and doing great. Everyone told me I would not be able to drive and at 24 I proved them wrong.


I am now 26, and I have driven everywhere! Need advise, encouragement, or just someone to believe in you, just give me a shout

Congradulations. I was told the same thing when I was younger and now I have been driving for about 12 years and even got my motorcycle license. Good luck and keep it safe.

Need encouragement I'm 36 years old and have to go through the process of trying to get the bioptic ion Ohio again 2 or 3 years ago I tried and was told I was too imature to qualify for the program. Was wondering if anyone was told that. I really don't want to go through the ups and downs again from one first doing the test at OSU and being told ya I am right for the program. Then to go to the place that does the training and get told no that's the downs. Oh and did I mention I'm forced retired. The reason why is I'm on Social Security and if I work they take from the check and I help my family with almost everything now.

 

Cheers

 

dragnfly50

 I am glad to learn that you have been driving for two years. i am trying to get my bioptics or some other system that will enable me to drive, but I am not able to afford it. Can anyone help me get funding? or someone to help me pay? Or get free one? PLEASE HELP!!

cademujohn....have you tried going to your local United Disability Services office?  I live near Akron Ohio and I went through them and got all of my training covered and I paid a portion of my bioptics and they paid the rest.

Kim 

 

I was able to get my bioptic through blind services the lighthouse paid for it.  I have been driving for 10 years now.

Hi,  I am in the process of obtaining a learners permit.  I purchaed a ves bioptic system about two months ago.  Any tips on how best to use it while driving.  I practice on my bicycle and while driving with my wife.  I tend to focus too much on the signs.  I have normal 20 200 vision  i live in springfield virginia.  Any guidance that you could provide would be helpful. Thanks

Sorry I don't have any advise for you on this matter.. But I do have a question.. You said that you was trying to get your learners permit.. What type of albinism do you have? My son is 5 years old and he has OCA1. We was told that he would never drive. However he is always talking about driving and how good a driver he will be and he can't wait to get old like his dad and I so he can drive. He just told me the other day that he had a dream that he was driving his older brother (doesn't have albinism) around. That just breaks my heart when ever he talks about it. 

Sandi ~ Dylan 5 yrs old OCA1 

I have no idea which type I am my eyesight is 2200 I use a bioptic telescope mounted to my glasses to drive.  I was told for years I couldn't drive by my parents.  I got my liscence when I was 29.  I have the light skin and legally blind.

My son's vision is 2200 also. They have told us that glasses would not help him. But that does excite me to know that there is something out there that could help him when he is older to be able to drive and not have to depend on someone else. One of my biggest fears is that he would move away to a big city where they have public transportation. Thanks for your response.  I do have one more question. We have only been dealing with this for 5 years. And summer time or anytime we go outside is just so stressful for me just b/c I scared he is going to get sunburned. Maybe even more so now cause Dylan is in school and I can't monitor how much and how well the nurse applies his sunscreen. I have stressed to the school system along with the nurse how important it is for this to be applied the correct way. My question is what happens if he gets burned? I know that I have always been told that he just burns faster and worst than I would. That in it self is bad, but is that the worse of it?

Thanks for talking to me..

Sandi~ Dylan 5 yrs old OCA1

I have been burnt so many times when I was young and as a teen that I lost count.  When I get a bad burn I turn as red as a lobster and blisters come up.  It does however make me physically ill ie. chills fever, and nausia.  I learned to feel over time when the sun started feeling hot to me and knew I needed more sunscreen on.  I haven't been burnt in a long time now.  I apply sunscreen when out about every 30 minutes or so.  depending on what activity and wether or not in the water.  I do however have precancerious spots due to being burnt so many times and have had to have them burnt off several times some still come back.  You have to be careful since we are more suceptible to getting skin cancer.  When he is older you can find a Dr that may be able to fit him with a bioptic telescope to drive.  They do a battery of tests to see if you qualify to drive and it is done every 2-4 years depending on the state.  I now live in Denver, CO and love it here and yes I do use public transpertation at times.  If nothing else but to save gas right now.  But out of the large cities and small cities I have lived in I have had the least problems and not as scared here I guess since most of the other people here drive reasonably.  While I was in school my mom just sent notes to keep me out of the outside activities since they didn't monitor me well and she didn't want me burnt.

 What type and make of bioptic telescope are U using?

CONGRATS!!!! I am so happy to hear when people do what they are told they will never do!  CONGRATS again!

I can only speak from my own experience  First off my vision is 20/100 left and 20/200 right uncorrected, and 20/60 both eyes corrected with regular distance type glasses.  My vision was 20/200 and 20/400 until i was about 21 yrs old.  I was told that my vision improved with age as the muscles matured, thus diminishing my nastagnis.  I was also told that the reason my vision is now correctable from 20/100 and 20/ 200 to 20/60 is I got older and the four main muscles that control the shape and movement of my eyes have started to weaken and thus less nastagnis and optical corretion is possible to a certain extaent.  With regard to skin cancer I have been through a good bit of it and am prwtty well informed as to cancrs and suntan lotion.  I am an avid offshore fishermen.  I spend a lot of time in the sun.  I wear a wide brimmed hat, long sleeve collared shirt and pants.  I like Columbia clothing for this, it looks good, and I don't feel like a freak at the beach so to say.  I also use coppertone sport 30 first thing in the morning, after I take a shower, and let it dry before I go outside.  If iam good about my application in the morning I usually do not need more that that, but it is in the application.  I have had some skin cancer mind you  I have gone to see some of the best dermatologists in the country, especially DR. Michael Ming at the University of Pennsylvania's Pigmented Lessions Group..  They tell me most skin cancers come from burns at younger ages not so much from later on in life.  It takes time for the suns ray to alter your Skins DNA, it is not just one burn.  I am lso old enough to be of the UVAL 7 Sun Tan lotion. for mthe 1970's, which ain't doin squat for an albino like me.  I have had a suspected melonoma on my left ear, but they found no absolute evidence that it was a melanoma, as I am told it is very difficult to confirm in albinos.  I am also told that stistically speaking it is less likey for an albino to get a melonama, as we have less pigment, comparatively.  It is you melanin's DNA that must be affected by the sun's rays in order to form a melnoma, thus less % of melanin, less % chance of melanoma.  Just because I am an albino does not mean mean that my pigment cells are different, there are just less of them.  I guess my advice is take action, not a reaction, and be preventitive as far as skin disease goes. ,and with regard to driving ask the experts , I can only report on my personal experiences, based upon my own physical and visual history.