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Adults With Albinism Events

Last post 12-22-2006 11:56 AM by tikva. 18 replies.
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  • 12-09-2006 4:32 PM In reply to

    • Jessica
    • Top 500 Contributor
    • Joined on 01-19-2006
    • Watervliet
    • Posts 15
    • Points 105

    Re: Adults With Albinism Events

    Rita and all,

    I'm 25 years old will be turning  26 in one week from Monday. I would definately be interested in doing some outings because even though I'm about two hours and forty minutes from New York City I can't always afford to New York  to attend a NOAH meeting.

     

     

    JessicaTrask
    email and msn jessica.trask@creagan1.com
    AIM JessicaTrask2006
    • Post Points: 5
  • 12-09-2006 8:15 PM In reply to

    Re: Adults With Albinism Events

    Hi Skyla,

    I plan NOAH-PA events. This spring -April or May 2007- I will be planning an event in the Philadelphia area. I will tell you  what you ask, adults only, is almost out of the question. In the two events that I have had in the Philly area if the event is set for only adults our numbers would be way too low. Usually, when you reserve a location to have an event they require a minimum number.

    What I could do is compromise and have a "layered event". Something during the day for families and interested adults and then a separate gathering that same evening for adults only.  I would hope that adults would attend the event planned for family interests also. Believe me parents need to see successful, happy adults with albinism. As adults with albinism I feel I have a responsibility to reassure parents with young/teen children.

    My long range sketchy plan is to have a NOAH event in Philadelphia area this spring. We will be having the NOAH Family Camp this summer in Mt. Union, PA and in the Fall of 2007 I will plan an event in the Harrisburgh area.

    If you are on the NOAH mailing list you will be getting a quick NOAH-PA newsletter sometime in January 2007. I would urge you to join NOAH to ensure you get all the NOAH news from PA, The NOAH office does the printing and mailing of fliers for NOAH-PA 

    Skyla, get your bowling shoes out and polished. This is very important. In March NOAH will have a national bowl-a-thon and there will be bowling groups in the Philadelphia area. (I'll let you in on a little secret. I am the WORLD"S WORS BOWLER; I am 60 and when I heard bowl-a-thon I thought Oh God. Well, I went and did it with a group here in Scranton and had a ton of fun.) The monies raised in this bowl-a-thon directly benefit NOAH of PA as well as other NOAH groups and events around the country.

    If you wish to contact me I can be reached at Maryomutt@aol.com. Put NOAH in the subject line. Again let me tell you I am happy to have met you on the AOC and hope to see you at future NOAH-PA events.

    • Post Points: 20
  • 12-16-2006 10:01 PM In reply to

    • alisia
    • Top 500 Contributor
    • Joined on 12-17-2006
    • long island new york
    • Posts 25
    • Points 245

    Re: Adults With Albinism Events

    i would love do something i am 22 i live in long island new york it would be great for me i need all the support i can get email myshiftyblahhz@yahoo.com
    alisia shari morris
    AIM paxilprodogy
    Email myshiftyblahhz@yahoo.com
    • Post Points: 5
  • 12-22-2006 11:56 AM In reply to

    • tikva
    • Top 500 Contributor
    • Joined on 04-02-2002
    • Cambridge, MA
    • Posts 19
    • Points 200

    Re: Adults With Albinism Events

    Actually, I'd get excited about any and all of those options!  

    I just turned 33, and I live in the Boston area.  Lots of public transit here, so it's (relatively) easy for folks to get to events!  

    I think it'd be good to have some of the events be kid-friendly and some not.  I mean, child care is a concern for some people.  I'm not one of them myself, but I do understand that it's an issue.  

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    • Post Points: 5
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