Hey Una,
I am so happy to hear your good news. I also know that there are some people with a lot of the same symptoms as us with HPS, and yet they have some dense bodies on their platelets instead of having no dense bodies. It is rather baffling at times for sure. Hopefully since the daughter has the elevated platelet count, they'll be able to put her puzzle together, and hopfully get you some answers all the way around. I would truly be so frustrated.
Take care, Karen Tillman Regional Coordinator, Mid Atlantic USA Hermansky Pudlak Syndrome Network Inc. NY Home Office 1 800 789 9477, my email till3604@bellsouth.net My blog www.myspace.com/karenshpskorner My YouTube www.YouTube.com/tommytillman