NOAH AOC

Hello Everyone,

I am Amy and I am new to the NOAH website as well as the forums. I have a 7 year old daughter who does not have albinism and a three year old son who was just diagnosed with OCA 2. He was diagnosed with a few different vision problems at a very young age and has worn glasses since, but the Opthomologist just decided he was old enough for a diagnosis. He was sent to a geneticist and though we are still undergoing some testing, she made a quick diganosis, OCA 2 type albinism. I was in shock. I had suspected it but it was still very shocking to hear.

I have been doing some research but it seems other than NOAH, there aren't a lot of places where parents can or are willing to discuss this. I am looking forward to making new friends and learning from you other moms.

I have myspace

www.myspace.com/tamtmorris

but there does not seem to be a lot of albinism discussion on myspace. I was rather suprised by that considering there are so many people who are on myspace.

Have a great day.

Amy

PS...I cannot figure out how to upload a photo to my profile. Any pointers?

Hi Amy,

I just sent you an email.  You can find step by step instructions for how to add photos under the "my cuties2" thread.
I met a mom from Kentucky who has a little girl with albinism when I went to the NAPVI conference.  If you email me your email address, I could send it to her, if you'd like.
Welcome to NOAH.

 Mashawna
 

Hi there. Thank you for responding. When I first found out about my son's albinism, someone sent me to your website (www.parentofachildwithalbinism) and I found it so helpful that I included it on my son's tag, I hope that is okay.

It would be wonderful to be able to be in contact with another mother from Kentucky. Thank you for your warm welcome.

Hi.... I am a 'mommie2aWhitehairedPrince too... lol. 

Welcome to NOAH.... I added ya to my myspace.  Thanks for messaging me.  I am totally confused about the difference between OCA1 and OCA2??