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I am so frustrated with my son's new school!

Last post 09-11-2007 1:38 PM by JaC. 3 replies.
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  • 09-08-2007 12:46 AM

    I am so frustrated with my son's new school!

    I haven't been on in a long time, life just gets busy.

     My frustration is with my son's new school. My son is 9 and has ocular albinism. His best corrected acuity is 20/60 in one eye, slighty worse in the other. He wears glasses with prisms and had the surgery to correct a major head turn just before Kindergarten.

    Last year his home school approached me to let them test him for giftedness. I agreed to the testing and he scored quite high. His teacher said that he would become a disipline problem if he wasn't challenged, the Principal said his home school would not be able to offer the kind of programs and challenges he will get in this intensive school setting. The problem is he will have to be bussed to school and while he was approved for bussing, he will have to wait in a busy parking lot of a school for the pick up. Because he has low vision and because albinism and nystagmus can get worse with fatique, stress, glare, etc. I requested pick up and drop off from my home. They don't seem to share my concerns. I have had to agree to an Orientation and Mobility teacher coming to my home (I have to book time off work for this) and she is going to let him walk to and from the school while she follows him to make sure he CAN do it safely. I have explained he doesn't have any problem with mobility, my concern if for his safety while being unsupervised in the parking lot.

    Does anyone else have the problem of trying to explain albinism and how even though he can "see" he still has low vision? When I asked if someone if they had experience with albinism, I was told that this person did and that there were children with albinism in the school system with much less vision than my son.

    Help!

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    • Post Points: 35
  • 09-09-2007 9:12 PM In reply to

    Re: I am so frustrated with my son's new school!

    Does anyone else have the problem of trying to explain albinism and how even though he can "see" he still has low vision? When I asked if someone if they had experience with albinism, I was told that this person did and that there were children with albinism in the school system with much less vision than my son

     

    Hi.

    I haven't posted in a long while either.  We have very similar issues in our school and while the Vision teacher tells me she is familiar with albinism and works with children with low vision all the time, I am constantly having to explain things to her.  It can be very frustrating.  I hope that you can reach a solution to your son's transportation.

    Rod & Erin
    Texas
    • Post Points: 5
  • 09-10-2007 8:37 PM In reply to

    • Jeannine
    • Top 10 Contributor
    • Joined on 02-20-2002
    • Massachusetts
    • Posts 734
    • Points 4,615

    Re: I am so frustrated with my son's new school!

    Hmmm, 9 years old seems kind of young to be walking to and from school, and being unsupervised.  My son started walking to the library after school when he was in 4th grade.  He did this with other kids from his school (at that age, the kids didn't want to do the after school child care at the school).  We lived in a small town where cars strictly observed the 'stop for pedestrian' laws (New Hampshire - very vigilant about this law).  He had O&M instruction and the instructor took him through how to cross safely, and the best route to use to get to the library (no cutting through alley ways, etc.).

    From what you describe, I do have some concerns. For example, the O&M instructor is just going to follow him? In my son's case, ours actually did instruction first, then walked him through the route, and finally watched him do it.  The other question I would have is about the safety of ALL children who are waiting in that parking lot.  Low vision is one thing, but being unsupervised at age 9 is quite another. Whether you have low vision or not, I would seriously question the advisability of allowing children at that age to be unsupervised anywhere. I guess that I would pursue that question - how is the school providing for the safety of all the children who wait in that parking lot?  Is there an adult that ensures that the children get on the right bus?  When my son was in elementary school, there were teachers specifically assigned to parking lot / bus duty and they kept an eye on all of the children (not just those with low vision). . .

    The low vision and issues in albinism are quite unique, so I think your experience is probably similar to a lot of the parents here.  I was fortunate that my son's TVI (for 8 years) had experience with several children with albinism, and was well aware of the specific vision issues associated with glare, and so on.  Unfortunately, albinism is still pretty rare so even experienced TVIs (and even O&M instructors) may never have dealt with a child with this specific eye condition.

    Jeannine
    • Post Points: 20
  • 09-11-2007 1:38 PM In reply to

    • JaC
    • Top 10 Contributor
    • Joined on 08-15-2004
    • Posts 368
    • Points 3,530

    Re: I am so frustrated with my son's new school!

    Insist on what you want. I would just tell teachers,etc. what I wanted, needed for my son, sometimes they didn't quite understand the "why", but I insisted nonetheless. Safety is nothing to negotiate on. Can someone help him get on the bus?

    A not so funny story - on my youngest son's IEP several years ago, it read " will cross busy intersection 4 out of 5 times successfully"

    And WHAT exactly is happening on that 1 of out 5 times that it wasn't successful??? No thank you.

    • Post Points: 5
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