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Anyone in england who can help me

Last post 12-31-2007 11:56 AM by Brittany Griffin. 2 replies.
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  • 12-28-2007 6:37 PM

    • Jo-jo
    • Not Ranked
    • Joined on 12-28-2007
    • England
    • Posts 5
    • Points 290

    Anyone in england who can help me

    Anyone who wants to talk to me . im new to all this  i have a little girl wth albisim.

     

    jo

    Filed under:
    • Post Points: 35
  • 12-29-2007 6:39 PM In reply to

    • Una
    • Top 50 Contributor
    • Joined on 03-20-2004
    • UK
    • Posts 233
    • Points 2,195

    Re: Anyone in england who can help me

    Have you found the Albinism Fellowship- we are a friendly bunch too Smile

    www.albinism.org.uk/forum

    Una
    Mum to:
    Daniel 12/1990 - OCA
    Emily 11/1992
    Katie 05/2000 - OCA
    My kids tested negative to HPS



    • Post Points: 5
  • 12-31-2007 11:56 AM In reply to

    Re: Anyone in england who can help me

    Welcome, Jo!  I am in the States, but wanted to welcome you to NOAH.  Having a baby is difficult in and of itself, but throw in the unexpected diagnosis of albinism and it can feel like a real double whammy!  My advice is to love your daughter and, if you have not already, see a pediatric ophthalmologist to follow her vision as she gets older.  If you have any specific questions, please feel free to ask! 

    Brittany
    Mom to Zachary, Age 5 w/ albinism (probably OCA1B)
    • Post Points: 5
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