NOAH AOC

The Albinism Online Community
Welcome to NOAH AOC Sign in | Join | Help
in Search
Ad: Get involved in research

Null points?

Last post 07-18-2008 1:46 AM by Roxanne. 5 replies.
Page 1 of 1 (6 items)
Sort Posts: Previous Next
  • 07-17-2008 12:30 PM

    • Jathan
    • Top 25 Contributor
    • Joined on 05-09-2008
    • Posts 303
    • Points 4,820

    Null points?

    My little boy who will be 11 weeks old tomorrow has started to turn his head to the right.  My TVI and I noticed it on Tuesday when she was working with him.  Could this be the start of his null point?  At what ages did your children start to use a null point?

    • Post Points: 35
  • 07-17-2008 1:13 PM In reply to

    • Kelli
    • Top 50 Contributor
    • Joined on 02-11-2007
    • South Dakota
    • Posts 163
    • Points 2,220

    Re: Null points?

    Ryker was probably 3-4 months when we noticed him focusing better in one position as he tracked objects.  He didn't really begin to "use" it on his own til  about 13-14 mos.  He now has a chin down and tilts to the right to get his best vision.  I would say that it's possible for Jathan to see things better in a certain position at his age.  Our OT printed out basic shapes and faces in large black print and I constantly tracked them in front of Ryker in all positions,distances, and settings.  I gave some to daycare to use during diaper changes, in his bouncy seat, ect.  I just felt the more oppurtunities I gave him to use his sight, the better at it he would become.  I would encourage Jathan to look in both directions so one eye doesn't get weaker than the other.  Hope this helps.

    Kelli


    • Post Points: 5
  • 07-17-2008 1:49 PM In reply to

    Re: Null points?

    Andy is 18 months and has not shown any signs yet. His vision teacher has focused his vision to the center of his nose since he was 7 months. One of the reason why we are seeing dr. Hertle is so he can tell us where is null point is. Also, to see is Andy is using both his eyes or just his left. He seems to suppress his right eye.  Vickie, I called for Rose and have yet to hear back. I am going to try again today. That would be wonderful to see you again so soon if we get the same day appointment! We do not think Andy needs any surgery for his nystagmus, but that wavelength test is what we really want to know. That is the 1st appointment we have then Hertle a few hours later.

    Also, when Andy's nystagmus started it was a constant "scanning". Once he hit 12 months or so, it has slow to a jiggle counterclockwise motion.

    Lilypie 2nd Birthday PicLilypie 2nd Birthday Ticker
    Lilypie 4th Birthday PicLilypie 4th Birthday Ticker
    Jill
    Mom of Katie and Andy (OCA1b or OCA2)
    • Post Points: 35
  • 07-17-2008 4:20 PM In reply to

    • Jathan
    • Top 25 Contributor
    • Joined on 05-09-2008
    • Posts 303
    • Points 4,820

    Re: Null points?

    Jill,

    I had to call a few times before she called me back. She is the supervisor for the schedule coordinators.  I hope that it works out.  I would love to see you guys again soon.

    Vickie

    • Post Points: 5
  • 07-17-2008 5:00 PM In reply to

    Re: Null points?

    Jill:

    Maybe Andy will be lucky and have a straight forward null point!   It will be interesting to see what Dr. Hertle says.  Keep us updated!

     

    Brittany
    Mom to Zachary, Age 4 w/ albinism (probably OCA1B)
    • Post Points: 20
  • 07-18-2008 1:46 AM In reply to

    • Roxanne
    • Top 50 Contributor
    • Joined on 11-09-2007
    • Pennsylvania
    • Posts 173
    • Points 2,950

    Re: Null points?

    When Lexie started her belly crawls that is when I noticed.  She would stop and twist up and around to one side to see us. 

    • Post Points: 5
Page 1 of 1 (6 items)
Ad: Support NOAH Funding
Add our Google Gadget to your iGoogle page
Add to Google
Powered by Community Server (Commercial Edition), by Telligent Systems