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What would you have done......

Last post 08-11-2008 3:35 PM by Cheryl. 4 replies.
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  • 08-04-2008 5:06 PM

    What would you have done......

    I work in the ER and we had a family come in and they had an 11 month old and a 5 year old. The great granfather had come in with Resp. failure. Everyone was was very upset. When I went to register the man I had his daughter sign the papers. As she was signing i looked over and saw my son's twin. This baby looked just like Andy and had a very active nystagmus. He has yellow hair and blue eyes as welll as the sister.  I said to the mom, oh he has a nystagmus. they did not say anything. I did not get a good look at the sister's eyes. I wanted to asked them about their baby, but because they were already upset, I did not want to say anything. But, this nystagmus was really fast. It was so obvious he at least had the nystagmus. I wanted to ask if he had albinism, but then I did not want to open up a new can of worms. I feel bad now I did not say anything, so this kid could get EI IF he had it. He could have had just the infant nystagmus and not albinism. But, both kids had the yellow hair and blue eyes with white high lights. Should I have said something?? If they were here for something lil, I would have said something, but their grandad went right to ICU once he was stabled enough. UGHHHHH, i feel like I should have said something...

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    Jill
    Mom of Katie and Andy (OCA1b or OCA2)
    • Post Points: 35
  • 08-04-2008 11:35 PM In reply to

    • Kelli
    • Top 50 Contributor
    • Joined on 02-11-2007
    • South Dakota
    • Posts 163
    • Points 2,220

    Re: What would you have done......

    Jill,

    I think you did the right thing by not saying anything.  It was just the wrong time and place.  Don't beat yourself up over it.  It sounds as if the family had enough to worry about at the time.  Maybe,they were too shook up to comment after you noticed the nystagmus, or didn't want to get into the discussion right then.

    Kelli


    • Post Points: 5
  • 08-05-2008 3:42 AM In reply to

    • Nikki
    • Top 500 Contributor
    • Joined on 04-04-2005
    • Kansas City, MO
    • Posts 21
    • Points 315

    Re: What would you have done......

    As much as you may feel bad for not saying anything I believe you were right for not doing so. They had so much other things going on at the time. You know I once said something to a childs aunt who was babysiting. I had come across her at a gathering at a mutal friends house. She had just told me how wonderful Michael was and how " you couldn't even tell there was anything wrong with him". I had suggested to her to have her sister get an eye test for her nephew and she got mad and salked off telling me there wasn't a thing wrong with him and stayed away from me  the rest of the evening. I think about how if that offended her then it might not have been best to tell the family you came across at such a stressful time for them. Don't worry on it to much there is only so much you can do, really.

    Nikki

    nikkib0414@yahoo.com

    www.myspace.com/darlingnikki0414

     

     

    Nikki
    Mother of Two Wonderful Boys
    Michael 13
    Christian 10

    • Post Points: 20
  • 08-07-2008 10:45 PM In reply to

    Re: What would you have done......

    I am glad I did not say anything. I HOPE they already knew he had something wrong with his eyes. I do not kow why I felt so guilty...

    Thank you for responding...

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    Jill
    Mom of Katie and Andy (OCA1b or OCA2)
    • Post Points: 20
  • 08-11-2008 3:35 PM In reply to

    • Cheryl
    • Top 25 Contributor
    • Joined on 12-26-2006
    • Tx
    • Posts 263
    • Points 4,540

    Re: What would you have done......

    yes... I dont think it was the right time to say anything.. but Im sure they were aware.. I think it is easier for us to notice just b/c we see it daily. lol

    Mommie2AwhitehairedPrince










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    • Post Points: 5
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