General Forum

South Carolina

nickell_1 — Thu, 29 Jul 2010 20:53:47 GMT

Laser eye surgery

Ciji — Wed, 28 Jul 2010 19:08:26 GMT

I've been looking into Laser eye surgery for my son who is 5 a vision of 20/400 and with glasses 20/200. He also has nystagmus and he is legally blind. Is laser eye surgery even something I should consider? and what are the chances of him going totally blind?

Starting school

Ciji — Wed, 28 Jul 2010 08:15:45 GMT

Hi every one, My name is Ciji. My son Elijah is 5 years old and is starting k-grade in Sept. He has albinism,nystagmus, and also is legally blind. Is he going to be able to go to a public school? And did any one or your childern get picked on in school? Also what are some steps I can take to help him in school? He is getting glasses but with them Doc says he'll see 20/200 is that really bad vision?

Tanzania to hang blood-drinking killer of albino girl

msruby45 — Wed, 28 Jul 2010 22:48:21 GMT

AT LAST THEY ARE FINALLY ACTING AND TAKING THESE HORRIBLE CRIMES SERIOUSLY!! AMEN!!

http://www.msnbc.msn.com/id/38449490/ns/world_news-africa/

DAR ES SALAAM - A man has been sentenced death by hanging for killing a five-year-old albino girl in Tanzania by hacking off her legs with a machete and then drinking her blood, media reported on Wednesday.

The High Court in the northern town of Mwanza on Tuesday convicted 50-year-old Kazimiri Mashauri after hearing he disappeared with the severed limbs and left her to die.

The girl's killing was one of a spate of attacks on the country's estimated 200,000 albinos in the past years, mostly in the remote northwest of the country near Lake Victoria, where superstition runs deep.

Albino hunters kill their victims and harvest their blood and body parts such as hair, genitals and limbs for potions.

Their body parts are prized in some regions of Tanzania, where witchdoctors say albinos -- who lack pigment in their skin, eyes and hair -- bring luck in love, life and business.

Al Shaymaa Kwegyir, Tanzania's first albino member of parliament, welcomed the conviction and praised the government's crackdown on the inhumane killings.

"The court ruling should serve as a lesson for others," Kwegyir told Reuters by phone from Tanga region where she is campaigning for a parliamentary seat.

Conference opening and closing videos

mktighe — Mon, 19 Jul 2010 16:03:07 GMT

The videos at the opening and closing sessions and slideshow from the conference were so entertaining and well done. Any chance they can be posted to the NOAH website or to Youtube? I'd love to share them with our family who wasn't there.

Disability

angelbaby — Mon, 26 Jul 2010 23:07:24 GMT

My daughter was recently diagnosed with Albinism and is legally blind. Does anyone know if albinism is considered a disibility and if there is any kind of financial assistance available?

NOAH Chhapter in Saint Louis

JessicaTraskReagan — Tue, 27 Jul 2010 18:19:23 GMT

Hi Everyone,

I just recently moved to the Saint Louis area. I live in Wentzville, Missouri. I'm looking to get involved with the Albinism Community in the area.

Help with a writing contest

Angela — Tue, 27 Jul 2010 03:33:42 GMT

Hi Everyone,

I entered a writing contest and I could possibly win an IPad!!! But, I need your help, please click on this link and vote for me. You don't have to sign up for anything, just click to vote. You can vote once every day and at the end of the week, the person with the most votes wins. So, please!!!!!!!!! :) Also, will you pass the word along for me? Thanks, I really appreciate your help!

http://howdoyou.com/pages/ViewEntry.aspx?entry=865

Angela

What's your Facebook!

Sherelle — Tue, 22 Jun 2010 19:19:10 GMT

I'm always on Facebook I would love to make some friends i could talk to get to know and we can encourage each other to reach are dreams

Mine find me by email Queensherelle@yahoo.com or typing my name Sherelle Fields

I can't wait to meet everyone

Hair treatments or shampoos for white hair turning yellow?

AlaraJRogers — Sun, 18 Jul 2010 17:22:17 GMT

My husband and son both are albinos, and I consider their natural white hair color beautiful. But both of them have developed yellowing on the exposed or older parts of their hair. My husband keeps his hair long, and it ranges from white hair at the top near the roots down to a deep yellow color at the ends. My son's hair is shorter, and yellows all over.

When my husband lived in a rural area, he says his hair remained white, but we live in a big city, so we think it's the air pollutants that are doing it, or possibly the water. Does anyone else have this problem, and if so, has anyone found a hair treatment or shampoo that can reverse the effects of environmental pollutants or strip them off and restore the hair to its natural white?

Photographic Portrait Series

aaron.tator — Tue, 20 Jul 2010 18:55:26 GMT

Hello,

I am a Toronto based photographer, and I am planing to begin a series of portraits of people with albinism. Having recently heard about Paul Ash and his work with Under The Same Sun, I have become very interested in Albinism and how skin pigmentation relates to peoples' sense of identity and culture. Albinism occurs in people of all ethnic backgrounds, and my hope is to produce a series of portraits for exhibition showing people of various races with Albinism. Clearly culture and heritage comes down to much more then the amount of pigment in our skin and hair, and yet people often define themselves as black, white, brown etc. The way we carry ourselves, mannerisms, dress etc. are all as big a part of what makes us belong to certain culture as skin color is, and that is the purpose of this series, to make portraits that demonstrate that. If anyone on this forum would be, or knows of anyone who may be interested in participating in this project please let me know. Also, any advice is appreciated.

2010 DC NOAH CONFERENCE WAS AWESOME!!

msruby45 — Mon, 19 Jul 2010 09:50:20 GMT

I attended the conference this past weekend and being a first-timer as a parent I didn't know what to expect. But OMG I must say I really enjoyed myself!! I have never felt soo much love before in my life!! The Albinism Community are the most loving people I have ever met. Most were soo friendly and extremely welcoming. Just seeing the many different races of Albinism was soo cool!! Even though I couldn't get my 17 yr old son to attend (he really doesn't realize and understand how much he missed!!) I still felt the warmth and love from most of the members. Oh I learned soo much about the struggles and how they have made their lives better. I also got tips and words of wisdom from those with albinism and their families on how to cope with it.

One thing I can say about the NOAH Conference it can be addictive!! I look forward to attending the next conference in 2012 at St. Louis, MO. Hope to meet some of you all in St Louie!!

Is Albino a negative term?

Mew_Universe — Wed, 03 Dec 2008 00:57:56 GMT

While I was researching albinism, on Wikipedia it says that 'albino' is a negative term and that those with albinism should just be called 'people with albinism' to avoid the negative connotation. Is this true? What are your feelings about the term albino?

(I put this up in the teens with albinism section, but I thought I'd repost it here :))

100% Guaranteed Vitiligo Treatment Without any side effect.

dree33 — Sun, 18 Jul 2010 14:23:07 GMT

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Vitiligo is a relatively common, acquired loss of pigmentation of the skin, affecting 1% to 2% of the population. Destruction of melanocytes, or pigment cells, occurs and the skin becomes white. The most common sites of pigment loss are body folds (like the groin or armpits), around body openings, and exposed areas like the face or hands. It can also develop at sites of injury: cuts, scrapes, and burns. http://www.supercareproducts.com

Do you text?

Jason H — Sat, 19 Jun 2010 03:14:31 GMT

Hey! A great trick! If you happen to send your $300 cell phone through a permanent press cycle. Stuff it in a bag of rice for three days. That might save it!

Recently this happened to me and I learned a couple of lessons. The first is that finding a cell phone that a person with severe vision problems can see is difficult. The second is that choosing to not have a cell phone is even more difficult. I have a touch-phone which I find has larger buttons on average, but that made it expensive to replace. I learned a valuable lesson.

I obviously digress from the title of this topic. I've recently started texting (very slowly for obvious reasons) and I'm thinking about expanding my plan. I've avoided it because I can't really text that well without a powerful magnifying glass. I want to know if those of you with poor vision text and if so how often and what plans you might recommend.

In-the-lens telescope

Marsim — Wed, 07 Jul 2010 07:51:34 GMT

Can anybody tell me if Dr. Peli's In-the-lens telescope has reached the market?

Research

jillyjill — Tue, 06 Jul 2010 00:13:30 GMT

Please use this link and complete the survey. This is part of my research. I am attempting to promote awareness about albinism as it relates to education. So if you don’t mind I would greatly appreciate it.

http://www.surveymonkey.com/s/KKMWNXH

what the conference like?

Sherelle — Tue, 22 Jun 2010 19:21:52 GMT

I'm 22 never been can you give me an idea thinking about goin idk yet

Noah conference schedule?

mama2SnJ — Sat, 03 Jul 2010 16:34:35 GMT

Hi all. I am wondering what activities are going on when for NOAH? Is there a schedule somewhere that I could look at? I am local & not getting a hotel and won't come each day but is it too late to sign up and come some of the days ? Just need to know whats happening when thanks. Can I mail in my registration at this point too?

Thanks,

Lauren

Anybody from Arkansas?

erika evans — Thu, 01 Jul 2010 22:58:33 GMT

Hi, my name is Erika and I live in Central rkansas. I am sending out a message to see if there are other members of the Golden Family living in Arkansas. You caan find me on FaceBook. Holler back now.

baby contest could use some support.

Nikki — Tue, 29 Jun 2010 23:51:48 GMT

Hi, There is a local contest going on in the cleveland area for the cutest baby. We have entered our daughter who has OCA1a. I would like to ask if we Could have your support in helping her win cause i think it would be great if a child with albinism won. At first i thought i would have been afraid to post her picture anywhere else let alone have a chance to be aired on the news. It was not till last sunday a comment from a complete stanger gave me the courage to enter her. I always thought people would look at her and be spooked by her apperance so to say as it has happened a few times. but lately the more we have taken her out as she has gotten older it has been the complete opposite. there are still the ignorant people but the more people i have ran into that were positive the more it helps to not let her albinism get us down.

If you are a local in the cleveland area with a child between 3 months and 18 months why not give it a go? The deadline for entrants is tomorrow evening and voting will start on the second of july. Any one can vote as well just have to sign up at the web site. I am really excited for this 8,000 people so far . best to the luck of the draw. Even if you dont vote please say a prayer.

Here is her link to vote for her:

http://fox8.upickem.net/engine/Details.aspx?p=A&c=17982&s=4274814&i=1&r=305591

And the homepage link to register to voteor to enter a child.:

http://fox8.upickem.net/engine/Welcome.aspx?contestid=17982

Trouble logging into Noah

Nikki — Mon, 28 Jun 2010 05:08:09 GMT

I do no understand why my computer will not log me into my Noah acct. I made a new account thinking it could have been because of an email switch. But it still would not log me in. It keeps redirecting me the the home page for AOC unsigned in after going to the login screen. But yet I can log in on my significant others iPhone. Any one else with this trouble or know how to fix this ? =(

TruFocals.

Alaskan — Mon, 28 Jun 2010 21:07:13 GMT

I'm considering trying TruFocals.

I'd like to know if anyone here has tried them and how well the glasses worked for them especially on close and mid distance work.

My vision is 20/400 but anything like magnifiers and the small telescopes that magnifies things has worked wonderfully for me in the past. I'd like to know if TruFocals work in a similiar manner.

DC Conference--question from a first-timer!

jonella59 — Sat, 26 Jun 2010 02:06:30 GMT

I guess this question might fall under the category of social skills! My brother and I were discussing our plans for the DC conference today--we are both extremely excited--and the topic of proper attire came up. Since I don't want to make any major fashion blunders (yeah, right!), could someone who has been to previous conferences give a little guidance here? I am guessing that casual dress is probably the norm, but are there any dressier occasions that we should be aware of? We are both well aware that it is hot and humid in DC in the summer and are prepared for that! Just wondering what to pack!

Thanks!

Joni

Designer Jewelry - Custom-designed Handmade Designer Jewelry

Arabela — Tue, 22 Jun 2010 10:17:39 GMT

Beautiful handcrafted designer jewelry is always in high demand. This is because handmade items are delicate and exceptional. And when the articles are made by following your own specifications, they are even more beautiful and alluring. Many designers all over the world offer personalized and custom-designed jewelry to their customers. You can also find websites where you can choose your own stones, ED Hardy metal setting and overall design of the article you are looking for. By following this method you can create your own jewelry articles by using certified diamonds and precious gemstones. In this article we will explore some of the most popular custom-designed jewelry articles.

High quality handmade jewelry is offered by only a few renowned designers. You can search for websites where personalized jewelry option is available. Some designers also offer to use stones and metals provided by you. If you do not trust the selection of different jewelry makers, you can provide them with your own precious gemstones and diamond collection to be used on jewelry articles. Custom engagement rings can also be created in a similar manner by specifying your diamond cut, clarity, color and carat. This way affordable and totally unique rings and personalized wedding bands can be bought.

Engraved designer jewelry in the handmade category is also loved by many people across the globe. The designers show the casting and cut of custom-designed jewelry before finishing it and giving it final touches.ED Hardy shoes The finished pieces are quite stunning and absolutely beautiful. You can design rings, earrings, necklaces and bracelets for both men and women. Rare designs like interlocking, tri-color and rolling rings can also be created by using the custom-design jewelry option. People order nugget rings, hand engraved wedding bands and gemstone rings in this category. In addition to these, lucky or four-leaf clover pendants, sacred heart necklaces, diamond earrings and gemstone bracelets can also be ordered.

People like to buy custom-made designer jewelry because of the wide range of exotic colored crystals and precious gemstones that can be used. These gemstones include, but are not limited to, aquamarine, garnet, sapphire, peridot, diamond, amethyst, ruby, opal, and emerald. In addition to these, you can also select among different Swarovski crystals such as bicones, briolettes, and rhinestones, and glass beads including heart-shaped silver beads, and millefiori beads in different shapes and colors. By utilizing these inexpensive crystals and semi-precious gemstones you can specify and create a fairly affordable jewelry article for yourself ED Hardy clothes .

TThere are many categories of handmade designer jewelry and one of these is the custom-designed category. There are many websites where personalized jewelry is offered. By using this option one can specify their own choice of gemstones and metal setting to create a piece according to their requirements and budget. Diamond engagement rings and wedding bands can also be made by following this method. Religious jewelry, lucky necklaces, leather and magnetic bracelets, and modern silver and gold chains can be custom-designed to suit your specifications. You can find a number of design ideas and instructions on how to create your own jewelry links of london.