Teens with Albinism

How to do your makeup....

April_Nicole — Wed, 16 Jun 2010 15:58:18 GMT

ok guys so i made a youtube channel for makeup tutorials and hair stuff and beauty stuff just cuz i really like all that stuff, it is not specifically for people with albinism but just to show different way i do my makeup, and if you guys anna check it out the link is www.youtube.com/user/simplysweet0604 check it out and please no rude comments, cuz i know some people dont do their makeup and dont want to, but if you do and you wanna see how i do it then check it out!!

Explaining My Cane

DecolorCervus — Thu, 23 Jul 2009 04:21:20 GMT

Hi!

My name is L, and I'm an OCA2 albino. I should probably be in the adult forum, but I feel I "mesh" more mentally with the teens here at age 20. To the point, my hardest visual problem to cope with has been severe photophobia, and at the advice of a blind friend, I've started learning cane travel to lessen the strain on my eyes in high-light situations. This improved my ability to navigate duiring the day dramatically, but I've run across a new problem, other people!

People have accused me of faking being blind, of being an attention seeker and of even making fun of the blind, even my life-mate's family thought it was an attention scheme when This actually almost made me stop in my tracks and go back to a life of pain and disorientation. Does anyone have any tips for explaining this to nosey people? Should I just ignore them? One of the bigger issues is my ability to drive (under special conditions) has caused me some trouble, as I folded my cane up from being in a painfull bright store and went to my vehicle. Another issue is explaining to business accquiantances that I'm an artist and illustrator (granted, so is my blind friend who encouraged my pursuit of cane travel)

I don't even really try explaining my albinism any more, as because I do not have pink eyes or white hair, I "Must not be albino" in the eyes of the general public. I wish I didn't have to ask about this at all, but people seem to want to make it their business. Is the best thing to just walk away? Mostly, I just wish for some input on how to explain this, and deal with the overly curious, and have the thin veil of hope someone else has this same problem as well.

Thanks and take care.

new friends

Diane Wells — Wed, 21 Jul 2010 00:12:38 GMT

hey my name is diane and i live in New hampshire. for any of you who wanna talk about anything im better at texting so give me a text at 1-603-738-7231 i think it would be cool to talk to someone who is like me.

new MTV documentary looking for people with albinism to share their stories!

karen s. — Mon, 11 Jan 2010 21:08:07 GMT

hi everyone:

I am currently looking to talk with young people living with Albinism who are interested in sharing their experiences. We are in the preliminary stages of a new segment for MTV's documentary series "True Life" and focusing on initial interviews & research right now. Please see our "casting call" below and get in touch with me via email at karen@gigantic.tv if you are interested or know someone who might be interested in participating. Any suggestions, questions, or comments would be greatly appreciated!

thanks!

Karen

Gigantic! Productions

True Life: I’m Living with Albinism
Were you born with albinism? Do you have pale skin, light eyes, and white-blonde hair? Does albinism make you feel like an outsider? Does it affect or burden your every day life? Are people afraid of you because of the way you look? Do you view your condition as a blessing or a curse? Do you struggle to find acceptance in social settings or school because of your condition? Does albinism make it difficult to find work or function in other ways? Are you taking measures to hide or disguise your albinism? If so, MTV wants to hear your story.

If you appear to be between the ages of 16 and 25, please email casting@gigantic.tv with details. Please include your name, location, phone number, and photograph if possible.

About “True Life”:

Since its initial episode in 1998, MTV's award-winning True Life documentary series has told remarkable real-life stories of young people and the unusual subcultures they inhabit. Whether documenting the lives of gay marriage activists, individuals dealing with obesity, or teens in high school--the True Life series tells its stories solely from the varied voices and points-of-view of its characters--putting the series in the unique position of reflecting the state of youth culture at any given moment.

The format is strictly first-person, which is to say that we don't filter the voices of our subjects through narrators or other third parties. All we do is follow. It's our hope that by allowing young people to tell their stories in their own voices, communicating directly with their peers, we can impact the way people interact and engage with the world they live in.

A problem with "friends"

Katie Peters — Sun, 11 Apr 2010 19:27:27 GMT

My so-called friend has been with me since 4th grade. She has recently been making my life horrible. I admit, my friend told me to post something about her on a website, but I didn't mean for it to get out of control. She said, to my face, that I only wear glasses to cover up my big nose. She also said that I was a walking, talking piece of paper and I was so white that I make Casper look black. She is no longer my friend, but I want to know what you think about her. I think she is awful. She is known as the bullyin our grade and she has only a few friends, though I was her friend, I feel ashamed to say I was.

Dying an albino's hair

Vince1228 — Fri, 12 Apr 2002 04:00:00 GMT

hey, I was wondering if any albino's have dyed their hair to like a blond type of color. I wanted to know which one to use to get it to look like a regular color. On the boxes of hair dye, they only tell you what color it you turn your hair if your hair is a badic color like brown, black, etc. If you have any past experiences with any colors place let me know.

Thanks

questions about the future

krissy — Wed, 02 Dec 2009 09:51:16 GMT

I just have a ton of questions about schooling and stuff I just had a little girl with albinism and I think about what to do everyday I know she has along time to go but I like being prepared honestly how many of you would of rather your parents home schooled you insted of going to public school I want her to have the most normal life as possible but I know how high school for me was and I wouldn't want to go back my little cousin has albinism too he is 6 and goes to a public school but he has rhe personality for it idk he is just not shy and can be friends with anyone but me I'm shy and bailee (my daughters) dad is pretty shy too so more than likely she won't take up for herself and I can't go to school with her to make sure noone makes fun of her idk if its just a mother thing or what

is there anyone here that doesnt wear glasses??

OnlyTheBestestPartAlbinoEverrr — Sat, 20 Jun 2009 22:23:30 GMT

im aparently albino/part albino but iv never worn glasses/sunglasses etc.

does that make me less albino.. or just lucky lol

albinoism

blonde101 — Thu, 19 Jan 2006 05:00:00 GMT

Has anyone else been called...
"that person with albinoism"?
Ami

take pride in being blonde!

Hidden Talents?

winry — Wed, 18 Jan 2006 05:00:00 GMT

Do any of you have talents that you would like to share? It's ok to share, your not bragging.
I have few I would like to share. ^^
I LOVE to sing. I sing at my church every Sunday and Wednesdays.
My other talent is drawing. The picture you see for my signature is something I drew anc colored usuing my compy ^^

Self-Tanner for 16 Year old Guy

Kylash — Sun, 23 May 2010 23:31:28 GMT

Hey everyone, First of all I'd like to say I've been reading these forums for quite some now and have found it to be just a wealth of great information. I'm a 16 year old high school student and I'm looking to try something I've never done before. Tan. From what I've read around the forums thus far, there seems to be no shortage of products to chose from. I'm just curious if anyone (maybe specifically guys) have some general advice about tanning and any experience with specific products that they could recommend for me. Thanks a lot!

music lessons

Katie Peters — Wed, 29 Jul 2009 03:59:16 GMT

hi everyone! i'm have been taking piano lessons since the first of March and i know how to play the recorder. i was wondering if anyone else takes instrument lessons and what you play.P.S i'm looking for some friends in my age group (preferrably ages 9 the 15) thanks!!!!!

.

Jasmine — Sun, 11 Jul 2010 06:11:39 GMT

My names Jasmine. I'm new here.

Skincare / Preventing redness?

CBoidy — Tue, 23 Feb 2010 22:58:17 GMT

Hey everyone, my name is Christopher Boidy from a bit north of Chicago. Introductions aside, I have a teensy little problem. Though not constant or anything, I have this issue with facial redness. . The guy in the salmon shirt and suit, that's me. See my concern? I was thinking maybe some foundation could help me hide that, but then there really isn't much in the way of colors matching an albino skintone... Anyone else had this issue? And is there a way to fix it? =\ Thanks

Albinism in Alabama?

Chelsie — Fri, 02 Jul 2010 04:20:30 GMT

Hello!

I live in Alabama and I was wondering if anyone was on here that lives in Alabama

Facebook

Emperor Hafeez — Tue, 25 May 2010 09:40:43 GMT

We could get to know each other and have live chat and discussions on facebook. Why not drop your i.d and lets connect.

New to the forum + questions

laetgov — Sun, 20 Jun 2010 13:19:57 GMT

Hi guys,

Well, I'm new here. I have no ablino friends, I joined the forum because I'd like to share feelings and experiences about it.

I have OCA. I'm studying at University now. High school was the worst part ever for me because I didn't feel well about looing different. Now, things are better. I dye my hair in light blond and put make-up like mascara. I know you have already talked about it but I'd just like to know who else dye their hair? who doesn't? As I said, I feel better now about looking different so I was thinking of having my natural colour back but I don't know if I should do so... Do you think my life will be harder if I stop dying it??

Another problem I have with the dying thing is that I become allergic to the dying products!! My head is itchy! What product do you guys use? do you have that itchy thing too?

About the skin, do you know a skin tanner that doesn't smell like apricot yogurt???? I hate that smell...

I like dying my hair and putting make-up but I wonder if it is not bad for us?? I mean, we are already more likely to have skin cancer and it is well known that dying products and skin tanners are crap for the skin and are full of products that can give cancer too. I know almost everything gives cancer etc... i'm not over concerned byall the crap we eat or use or whatever, I was just wondering if we should be careful with the things we put on our skin?

Well, sorry that's a lot of questions... the most important one is the one about the dying/not dying dilemna!

Hope to hear from you,

I'm glad I've found this forum!

Laetitia

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My new blog & YouTube channel about beauty(and more)

lil_fairy — Wed, 09 Jun 2010 22:55:21 GMT

Hello guys!!!

I haven't posted on here in quite a while but I have been a bit busy with the move and settling in and everything. Yes, I have AT LAST managed to move to Ireland from my home country Italy!!! Fingers crossed it'll be the dream come true I have dreamed of all my life...

So...I had been toying with this idea for a while in my idea and at last plugged enough courage to do it, so here are the links

http://hazyfairyland.blogspot.com/

http://www.youtube.com/lilfairydoll84

I know there are many people with albinism who are quite against the whole changing hair colour, fake tan, make up etc aspect, but unfortunately we don't all feel as confident in our own skin. After all if a person without albinism colours his/her hair and uses fake tan, why should it be aany different for us?!

Anyway... I hope it might be of interest/help to anyone...

Talk soon

Lil

Casting for teen with albinism

jennalise — Fri, 11 Jun 2010 16:12:43 GMT

Medical cable TV show needs a 13-15 caucasian girl in the New York City area with albinism. Great opportunity for a budding actress who wants to raise awareness of Hermansky-Pudlak Syndrome, a genetic condition in which albinism is a symptom. Dates are TBD.

If interested, please send a photo of yourself to vescovo@trueentertainment.net.

Who Went To There Prom?

The Missing Link — Tue, 15 Aug 2006 04:00:00 GMT

I have looked in the teen section and I've seen that there was nothing in it.

So I thought that I would start a conversation with the teens about going to there high school proms.

How many of you want to your jouner or sinour proms?

Did you go by yourself or did you take someone?

I hope that I'm not being too nosey but I feel that it's a very good topic to start with the teens.

How many of you did not go to your prom and why?

Is it because you could not find someone to go with you or is it that you could not afford to go?

All I am doing is picking an interesting topic for the teens to talk about.

Sincerely

The Missing Link

Life Is Like A Deck Of Cards, You Have To Deal With The Hand That's Delt To You!!!!!!

Stupid Mistakes

BoXeR — Tue, 19 Mar 2002 04:00:00 GMT

MOre and more as the days go by, I seem to be finding comfort in these boards, I still haven't totally fully grasped the logic in that considering that, it should be the oppposite, (guess its the realization that visino is not something that i can just ignore).
My math teacher who is fully aware of my visiual disability, (although of course does not know what i see and what i can't) asked me today if i had a problem with dimensions in the sense that, can i see the full page and numbers I am working with and whether or not that was one of the reasons I made stupid mistakes when transcribing numbers from one place to another. I told him I never thought of it. I mean how the hell am I supposed to know? It's not like I know what seeing perfectly means, what its like to see an entire page and actually know what's written on it without just looking at a jumble of lines that look like numbers. (sorry, blowing off steam). After listening to what he had to say, I figured it wasn't that dumb of a hypothesis. He based it on the fact that when I was doing some work in class, I tended to get very close (duh) thus reducing how much, i see (obviously). What do you people do about space ? (I'm sorry, I kind of went brain dead and forgot the proper word, its not dimensions its....grrrR)
How about with SAT's do a lot of you get bigger copies and if so what kind of junk do you need to say in the letter the counselor writes. I mean don't they say that your school has to make arrangements during normal tests. What are they stupid? I mean its not like they give us tests in Times New Roman 5 or anything.
Somedays are just so frustating, the realization of certain things...that you can't help.

thanks for listening
see ya'll later

"You don't look Albino"

DecolorCervus — Sat, 30 Jan 2010 01:17:35 GMT

Has anyone else heard/had to deal this? I get it every now and then and It's driving me crazy. I have pale skin, grey eyes (One is partially pigmented and has a weird wedge of green-brown), and straw-colored hair. I've been diagnosed as OCA2, but when I try to explain about my cane, I get funny looks. It's really frustrating, because I try to educate as well as I can, but people seem to have trouble believing it.

Partially venting, part wondering if anyone else has had to deal with this. I know one side of the coin is people being skittish or judgemental of you because of how you do look, and I get to put up with the other side, people assuming I'm crazy or lying because of how I "don't look".

share what you hate

Katie Peters — Wed, 29 Jul 2009 17:48:36 GMT

hello everyone. i know all of us deal with frustration from this condition, i this is just a place where you can tell me your biggest problem and maybe i could give you some advice, and even if i cant, you'll feel good getting it off your chest i'll start out.

everyone always has to make fun of my skin color and cant accept me for who i am
the teachers are so inconsiderate at my school and i can never see the board because i always get sat in the back
i hate that a lot of movies pick on people with albinism by saying that theyre evil
i was waching a kid's show called "The Replacements" and the bully said "see ya later, Paleosers!!!" i don't know about you , but to me thats offensive
what i hate the most is my friends are always saying rude stuff and making fun of me, so i don't know if i should keep them as my friends, or find new friends who understand what i'm going through

now it's your turn!!!!

Looking for Support for 17 yr old African American in LA Area

Lin Min — Wed, 28 Apr 2010 18:30:39 GMT

Hi folks, I am looking for someone in the LA area who is willing to spend some time with a 17 year old African American who has been in foster care for most of his life. He has been targeted and ridiculed much of his life, and his biggest struggle is with wanting to be "normal" and look like a "normal" African American. He wants to use tanning lotion to turn his skin darker, wear brown contacts, dye his hair, etc. - all to not look albino. He wears jackets with hoods constantly because he wants to hide his appearance from others. He feels alone and thinks no one understands what it's like. He has never met another African American with albinism, and it would be so great if someone in the LA area would be willing to reach out to him. Please let me know. Thanks!