My son and DIL are in the process of adopting a baby who has albinism. They are adopting through an agency and it was just by chance that at this particular time a baby was born with albinism. I'm new to the world of albinism so hope there will be others who can give you a more specific answer to your question.
Kind words can be short and easy to speak, but their echoes are truly endless.
Mother Theresa