Jessica that was very interesting about what you said on the stem cells. We finally heard from Moorfields Hosp and after seeing photos of Hayley they told us they couldnt do anything to help her and that no further research was being done for them, so that was very sad news for us, plus everyone else!
Hayley is a OCA1A, she has permanent transparence eyes all the time, so always red eyes, her body doesnt product melanine at all. We are lucky though as both her eyes are fairly straight but does tilt her head to see things better and her eyes have been tested and she is classed as legally blind at 6/60.
After hearing all the bad news we are hoping that she can wear the coloured contacts as they should help block out some of the glare for her and maybe improve things abit. We have a great support in the class room for her, she sits near the front, has a CCTV, the room is darkened as much as they can and got her back to the light. I also bought her a sun viser that she wears it class as that helps with the above lights as she doesnt like wearing her glasses in class, so this is were the contacts will be great. All her class work gets enlarged for her and we also have a CCTV at home for her. We considered braille for her but with the technology at the moment we have decided to leave it and try and teach her ears to work better and get her listening to tapes and stories that way etc. We dont have an appointment to see the eye specialist till mid September regarding the contacts so we just have to wait.
I heard of a guy that grow frogs eyes a couple of years ago?? Anyway heard of his progress?
Plus I heard of someone that injected stem cells into the eye nerve system that is connected to the brain and it corrected itself?!? Has anyone heard of that progress?
Thanks for all the advise it has all been taken on board, yes I have now checked out the Aus fellowship forum.