NOAH AOC

Hi Mona.  My little girl is now 4.5 yrs old.  She has OCA1B.  We had the genetic testing done soo after her birth and the mutation was found.  She would appear to be at the milder end of the spectrum.  Hair is not white but is indeed very blonde and bright but not luminous if you know what I mean.  Her skin of course ...

Any views?

Hi there, I am not too far ahead of you in that my little girl is 4.5yrs of age.  We are in Ireland.  Grace will start mainstream school in Sept and has been in Montessori also for the last year and she loved it.  It worked very well for her in that it was challenging and also stimulating.  She is a bit of a live ...

Hi all My daughter is OCA1b and will be 4 yrs 9 months when she starts mainstream junior school in Sept.  All very exciting and at the same time a bit daunting.  My older boy will be in the boys school next to hers and I also have a one year old.  We are in Dublin. As part of the preparation for her going to school we ...

Your welcome.  Didn't realise you were in Alaska - yep bet you're well used to the dull days so.  I'm sure we'll chat again.  But I hear you...........I know it's blooming hard and I still have my bad days but most of the time I am just going through the day like with any of my other children and I forget about ...

Thanks all for the comments about the swimming lessons.  It's funny how the children all vary.  I suppose each child has their own little quirks.  Oh Adeline I feel for you.  I know it's very hard to watch your child on days like that when inevitabley we all look at what the other kids are doing and compare.  But ...

Hi all  It's been a long time since I posted on this site.  My little girl is now 4.5yrs old and is due to start junior mainstream school in September here in Ireland.  She has OCA1B.  Its been a hard few years in the sense that I think I am still grappling with accepting her vision issues, although she has totally amazed ...

Hello all & hello to Mollies Mum,  I haven't logged onto this site in a long time. I too am in Ireland, Dublin actually.  I have three children and my second child was born 4 years ago with the condition so I totally understand your shock.  Firstly congratulations on your new baby.  I know it's a terrible shock and ...

Hi there I was the person who originally started this thread after my daughter was born with OCA1b and wondered "what could we expect" for her future.  I haven't logged on here in a long time but am just catching up now.  Can I ask is this a quiz?  Is this a game whereby we are to guess who this player is?  I am a ...

Hello all I see there are some new posts to my query on this.  In case anyone should think that I was considering these injections for my daughter who is only 2yrs and 8 months that was not at all the case.  I was merely looking to see what people might do for products in later life and my bit of research brought me to this ...