NOAH AOC

I called their eye center and a staff named Bianca yesterday and left her a message. She emailed me back later yesterday saying they hope to know Dr. Hertle's new contact info around the beginning of summer! The number I called is 412-692-6828. Dear Sandicone, this is very different from what you...

Joni, Thank you very much for sharing these. Every time I read about that people with albinism live normal life, get education from university, get married and have kids, I feel a bit more released for my son. Neal is only 10 month now and doesn't understand much yet. There's still a long way...

Dear Joni, I've read some of your recent posts and learned quite some new stuff, including Dr. Brilliant's research. Thanks for sharing the info and I do feel that you have some different perspectives, which I'm very interested in. I'm also mom of a boy (10 months now) with albinism,...

http://www.latimes.com/news/nationworld/nation/la-sci-gene-therapy25-2009oct25,0,2334183.story Simply judging by the description in the article, it seems the same methodology might be used to treat Albinism as well, by just cloning Albinism related genes and injecting them into eyes of people with Albinism...

We provided the research materials we have about Tenotomy to Neal's PO and he read all of them. He's a very nice guy and seems willing to learn about new things and keep his mind open. He admitted Dr. Hertle did something innovative and it seems working quite well with his hypothesis behind....

Sure, Nancy. Keep in touch and I'll contact you before we go.

Just read the papers on Dell'Osso's website and here are my understandings that may not be accurate: Per the papers the benefit of tenotomy is to see better (visual acuity), broader (larger null point) and faster (less time to fixate an object). The "better" part is from improvement...

AtlantaGranny, congratulations on your grandchild and here are some facts to share with you: [They both have perfect vision, which I think is a trait of Albinism (?). ] Low vision is very common for people with Albinism, but the level can be different depending on what type of Albinism and some other...

Thanks! We'll come from Hong Kong, where the weather is similar to Florida and much warmer than Pittsburg, plus considering the sun exposure outdoor, we'll likely prefer indoor events. Our son Neal will be one year old in next Feb so he should probably still be learning how to walk by then. We'll...

Sounds fun! Thanks for the introduction. We plan to stay at Pittsburg for a week in next Feburary and will certainly be interested in visiting these places, particularly before the surgery. What I'm also thinking is how to entertain the one-year old boy after the surgery if he cannot open his eyes...