NOAH AOC

My daughter, Hannah, is 13 years old and has ocular albinism. I am looking for other teens in SC that she could communicate with and possibly meet.

Jessica- First of all, welcome to Noah , I will tell you that if you can't find an answer, someone will find it for you. My grandson Alexis (AJ) was diagnosed at 2 months with OCA type 2, but he also has Nystagmus-(Rapid eye movement-back and forth) and Ocular Albinism. Has you son been tested for...

I posted that question about Disability. I am hopeful that we will get some answers. I know how you feel, Alexis (AJ) ate peanut butter with a spoon Saturday and we were very excited-Protein. My name by the way is Connie..

I am so glad I posted this message: I have gotten so much from each of you that have participated in this discussion.. I have learned and am still learning alot... For example : Saturday, Papa was eating villa wafers and peanut butter. AJ walks over to the peanut butter jar and grabs the spoon and sticks...

Amy, Sounds stupid to some people but A.J's Nystagmus has improved a great great deal and all we can say is that it was alot of prayer from family and friends. His perifrial (sp) vision is improving but still not very good. He wasn't tracking either so our vision therapist suggested that we get...

Congratulations on you new son Jack, I remember going to the Dr. and saying to her, something isn't right with A.J.'s eyes, they are moving to fast. She looked and said that we needed to go to Cardinal Glennon Childrens Hospital in St. Louis, Mo and talk with their Ocular Dept. Alexis was diagonosed...

Bronco16fan, First, Congratulations on the birth of your son Avery. Second, Welcome to the best place in the world to get answers.Thirdly, don't panic, you are not alone. My grandson AJ also has Oculocutaneous Albinism type 2 and Nystagmus. He was diagonised at 4 months in St. Louis, Mo at Cardinal...

Thanks so much, I really appreciate your insight. AJ's dad is in the Army in Washington State and I am hoping that he will eventually help. He has and Occupational Therapist that comes in once a week but it doesn't seem to help very much, he is starting to get curious about what everyone else...

Hey everyone, Does anyone have any ideas about how I can get my grandson to eat...... He ate baby food wonderfully, but stage 3 baby food and regular food he hardly touches. He eats only-pancakes,french fries, crackers, chips, cookies, an occational banana other than that-NO VEG-NO MEAT,and no Fruit...

A.J. or Alexis has had Early Intervention for almost 1 year, he had a vision therapist who works with him for 1 1/2 hours every week and 2 other therapist also. They are great and have helped him a great deal. I also work with him daily on specific items. I have been so disappointed with products available...