NOAH AOC

My husband and I have a son who is almost 2, with albinism. We are in the first stages of adoption, and we really want to adopt another child with albinism. We know we want a child with visual impairments, since we already know how to deal with that issue. How did some of you come to adopt? Is there...

Hello! I am sure that my son has OCA1 based on genetic testing. We are not comletely sure if it OCA1A or OCA1B. We have had varying opinions on this. My question is this..... Should we have Jathan tested for HPS, even though it is confirmed that he has OCA1. Is it possible that he would also carry the...

The Vice President of the HPS Network, Heather Kirkwood, is a friend of mine. She lives here in my area and did the bowl-a-thon with us the last 2 years. She gave me some more information about the blood test for HPS. Testing for HPS is not yet a genetics-based test because we are certian that not all...