NOAH AOC

Hi Heather, I have four year old son and in the process of finding albinism type via DNA testing. We sent the blood samples to Colorado University and found out that he doesn't have type 1,2,3 or 4 albinism. So we are requesting them to test again, whether my son is HPS type? Hopefully they still...

Hi, I would suggest you call the NOAH main number 800 473-2310. Explain that you have new diagnosis for HPS and ask to be put in contact with Donna Appeal. She is the president of the HPS Network and I am sure she can help answer these questions for you. You can also take a look at the HPS Network site...