NOAH AOC

Hi, We have fraternal twin girls that are 4 months old this week. One of our girls was diagnosed with OA at 2 months. We are struggling with the decision to make the trip to the conference. We live in Los Angeles and we're not sure if my husband can go because of work and we are debating the benefits...

My 4 month old was recently diagnosed with ocular albinism. The ophthalmologist said there wasn't anything we could do at this point and we just have a follow up visit in a few months. I'm concerned that I'm losing valuable time to do vision therapy or anything else that might help my son...

Hello everyone, first want to thank you all for taking the time to post all the useful information on this forum. It has really helped me transition to this new Albinism world! My 3 1/2 month old son Colin was just diagnosed Friday with Ocular Albinism, possibly X chromosome type as well as Nystagmus...

Over the passed few weeks i've notcied that my daughter Carrah's right eye is turning in a lot more than it previously had. My inlaws have noticed it as well. My husband thinks it is just a lazy eye, but I think it is becoming crossed. She is set to have an Opthamolgist appt in June or July of...