NOAH AOC

I'd like to tell you about a site which helped me. They look really attractive and affordable for its price. What’s more important, they are foldable, will fit any backpack, and you can drop them as many times, as you want – and they will still work as new. The manufacturer is US-based, and they...

My daughter, Hannah, is 13 years old and has ocular albinism. I am looking for other teens in SC that she could communicate with and possibly meet.

My Dual-Media Article (Still in need of a clever title) Beginning this year, her first year of preschool, Lyra will be learning both print and braille. This concept is known as “dual-media.” I must admit, when Lyra was a baby, and we were still coming to terms with her condition, the LAST...

Beginning this year, her first year of preschool, Lyra will be learning both print and braille. This concept is known as “dual-media.” I must admit, when Lyra was a baby, and we were still coming to terms with her condition, the LAST thing I wanted to hear was someone telling me that Lyra...

I have macular degeneration in both eyes - right eye I have peripheral vision only - left eye I have 20/40 vision but it fluctuates - I am hearing about biopics for assisting with driving but understand they are not legal in Florida - Anyone have any suggestion for keeping me roadworthy and the rest...

Hey Jessica, it's just a part of being us. I have walked throough a sliding screen door. I have walked into glass doors also. I go to the base gym with my mom and the floor is painted black. They have these raised rails dividing the lines of equipment and guess what, they are painted black. Who trips...

Svenn, I was in the same boat as you 4 years ago. It did take some time to get the diagnosis, paperwork and help. I put together this free website, so check it out while you are waiting: http//:www.mothersplayground.com. There are things you can do right now to make your baby's life easier. We have...

Lisa, It's not possible the your daughter has just Ocular Albinsim because 80% cases of Ocluar Albinism which the gene is on the X Chromsome which means it's X-linked which also means the a female is a carrier anc can only have a son with Ocular Albinism. Chances are your daughter most likely...

Prior to this first IEP meeting, we had put together our own list of possible goals for Lyra. They were in a very rough draft form and I wasn’t exactly sure what the best way to word them would be. My plan for writing them was to follow the Smart IEP guidelines, but because I [...]

From the very beginning of this whole process, I’ve known that our biggest challenge would be getting the school district to teach Lyra Braille. I very quickly learned just how big that challenge was going to be. On Lyra’s first day attending the preschool for her transition, I dropped her...