NOAH AOC

This post is part of The Mother Letter Project. You can learn more about the project on The Mother Letter Project blog . For the purposes of that project, I address the letter to mothers, but what I say applies to father's as well. Dear Mother, Oh my, this is not what you expected. You dreamed of...

My boyfriend is albino and we have been dating for 5 years. At first, he acted as if nothing's wrong with his vision but months later he confessed that he hadn't been able to read menus when we got out on date and he was so embarassed to use his magnifier that he always ordered the same thing...

GREETINGS 2 ALL; I'M NEW ON HERE & I NEED SUM FAST HELP IN LESS DEN A MONTH I WIL TURNIN 19YRS OLD WICH MEANZ I WIL B OFF MY DAD HEALTH INSURE(BLU CROSS BLU SHIELD PPO) B-CUZ I'M NOT IN SKOOL YET AS A FUL TIME STUDENT (IF I WUZ IT WUD B ^ TO 23YRS OLD) EVEN DOE I'M NOT SURE DA INSURE...

Lyra’s early intervention team recently completed her yearly re-evaluation. Lyra is 2 years and 4 months old.?? Her goals are updated at least once every 6 months.?? Here are her current goals for vision, cognitive skills, gross motor, and fine motor.?? Her speech and language goals can be seen...

It’s a new school year and Trisha’s in third grade. So far, we’ve had a good experience with the district and a great experience with the teachers. From the get go, I’ve said that third grade would be a pivotal year. The print gets smaller and the expectations get higher. Third grade is also the year...

As I may have mentioned before, over the last 2 years, writing has sort of become my therapy. I recently had my 4th article published in Albinism Insight.?? The article is about emergent literacy in children with low vision.?? The information can really be applied to ALL children with low vision, not...

I just watched Gov. Paterson on The Colbert Report. What an inspiring human being. To see someone with nystagmus on a prime time cable show was a very exciting and inspiring! There are so many people out there paving the way for people with low vision, and people with nystagmus. There are no limits...

Hello! I just joined this site so let me say a few words about myself. I have OCA, am 43 years old and my best corrected VA is 20/80. I live in Vancouver, Canada, and work as a researcher. I am fortunate to have relatively good vision and the challenges I had to face as a student and in the working world...

Lyra had an appointment with her pediatric ophthalmologist this month, a check-up that was originally scheduled for the end of September. Several weeks ago, we lost one of the lenses from Lyra’s glasses. After over a week of searching, I gave up. We knew we had to get her a new pair. I didn’t...

I have updated the link in the sidebar, “How Lyra Sees” with the new longer version of the presentation. Dr. Brian Evan’s updated presentation includes more than double the number of slides as the previous one. This has always been very helpful to share with friends and family members...