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All Tags » Parent of kids with albinism (RSS)
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It’s a new school year and Trisha’s in third grade. So far, we’ve had a good experience with the district and a great experience with the teachers. From the get go, I’ve said that third grade would be a pivotal year. The print gets smaller and the expectations get higher. Third grade is also the year...
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Yesterday my daughter Trisha and I bowled as part of Team New Hampshire’s 2008 Bowlathon. It is always fun to make new friends and catch up with old ones (even if the little girl you met when she was four is now a freshman in high school!) We had 17 people from 5 families at our gathering. I want to...
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The time has come for my husband’s office and my son’s bedroom to cease being the same physical location. We’ve recently had part or our attic finished as my husband’s new office. We’re trying to do this as cheaply as possible, so we’re doing the painting. I don’t really mind painting, it is the prep...
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Hello everyone! Sorry its been awhile since my last (first) post! September was CRAZY! I don't know where it went! I think the main reason it seemed to fly by was that at the end of August, our PO said the big S word - "Surgery". Our little Rachel needed to have surgery for the esotropia...
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(Before I start, I have to put in a disclaimer that I have never "blogged" before, so bear with me if I make a few beginners faux pas...) When I think about writing a blog for NOAH, it seems that the logical topic for my first entry would be to give a back ground on how I end up writing a NOAH...
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I’ve always known I wanted kids. I was an only child and ALWAYS wanted a sibling, so I swore, I’d have lots of kids. Fast forward a few years and reality sets in. My reality is that 2 kids are MORE than I can handle. My husband and I both have albinism. We have a girl, 7 and boy, 3. They both have albinism...
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