NOAH AOC

My 4 month old was recently diagnosed with ocular albinism. The ophthalmologist said there wasn't anything we could do at this point and we just have a follow up visit in a few months. I'm concerned that I'm losing valuable time to do vision therapy or anything else that might help my son...

We saw our PO today and discussed Carrah's recent development of Strabismus. He agreed with me that it was pretty severe and affecting her vision. So he wants to try glasses for a couple of months and see how that works. If it doesn't work, then we will discuss surgery. Her vision is +3.25 in...

I feel a little bit without hope right now. That sounds drastic, but I just don't know where to find a doctor who knows anything about Albinism. We do see a Pediatric Opthamologist, he is the one who diagnosed Carrah. However, her pediatrician has no clue what I was even talking about when I discussed...

Over the passed few weeks i've notcied that my daughter Carrah's right eye is turning in a lot more than it previously had. My inlaws have noticed it as well. My husband thinks it is just a lazy eye, but I think it is becoming crossed. She is set to have an Opthamolgist appt in June or July of...

Hey all, I'm a typical 21 year old guy and am just really beginning to learn about my OA. Growing up I was always told I had "albanism" but nobody ever really explained what it was. I just knew that I had bad vision and glasses couldn't correct it, and that my eyes "shaked"...