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All Tags » advice » children with albinism (RSS)
  • New PO

    Hey, everbody! I have an appointment for Jathan with his new PO on August 9th. Does anybody have any suggestions on what questions I shoud ask or what I should look for? The first PO that I went to was horrible and left me crying for weeks. He was so negative and didn't answer any of the questions...
    Posted to Forum by Jathan on 07-30-2008
  • Nystagmus?? Please Help!!

    I have recently noticed that Jathan has a constant sweeping motion with his eyes from one side to the other (very frightening for a parent to see). I am assuming that this is the beginning of his Nystagmus. Is this correct? Also, for those of you that have experienced your children doing this, at what...
    Posted to Forum by Jathan on 07-02-2008
  • Macula???

    Has anybody else been told that their child is missing the macula? but that it might develop later? I am confused by this entire concept. Any information would be very helpful. Thanks....
    Posted to Forum by Jathan on 05-16-2008
  • Hats for infants???

    Could somebody please give me some suggestions on where to find hats with bills that are small enough for a newborn? My pediatrician strongly reccomended them but I can't seem to find them anywhere. Thanks for your assistance.
    Posted to Forum by Jathan on 05-15-2008
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