NOAH AOC

It went very well today. Andrew wasn't fussy at all which helped so much since everything took so long. She confirmed what the eye doc said about him having Ocular Albinism. She said his right eye is 2.75 and his left is 4.75 and he is far-sighted but she doesn't want to prescribe him glasses...

hello. my name is raven (yes, like the bird), and i write fiction. i decided to join this forum because one of the characters i have been working with for some time now happens to have albinism. i am still trying to work out exactly which sort of albinism the character suffers from, but in the meantime...

My friend has a son with ocular albinism. He recently started experiencing unrelenting, severe pain up and down his spine and basically he is in chronic pain. He has AHP (abnormal head posture), strabismus. She cannot get any local doctors to take her/him seriously, and two doctors have offered the opinion...

The 20/20 special was very well done. But I would not have put so much emphasis on entertainers being the only example of albinos being successful. Most of us don't end up as entertainers. I was also sad for the young lady who felt the need to cover her albinism. I do remember the teenage angst but...

Lisa and all, There has been a lot of talk about Stem Cell Transplants recently. A lot of parents from the United States and around the world taking their their children whom are totally blind or Visually Impaired or have other disabilities for Stem Cell transplants. Keep in mind these doctors in China...

Lisa, It's not possible the your daughter has just Ocular Albinsim because 80% cases of Ocluar Albinism which the gene is on the X Chromsome which means it's X-linked which also means the a female is a carrier anc can only have a son with Ocular Albinism. Chances are your daughter most likely...

I don't really know where to start here my son was diagnosed with ocular albinism at the age of 2months. We were referred to the childrens hospital in Kansas City, Missouri to a doctor who specialized in pediatric opthamology. However after having this doctor treat our son for 3 years we decided...

Hi, I've just joined the forum and I didnt see any specific place for people married to someone with albinism. I could really use some advice and guidance as my husband (of 8 months) is very senstive about the subject and will not discuss it. Yet it always comes up, and sometimes affects our marriage...

Any one on line from India ... Need address for low vision clinics with aids in India for albinism

Hey, everbody! I have an appointment for Jathan with his new PO on August 9th. Does anybody have any suggestions on what questions I shoud ask or what I should look for? The first PO that I went to was horrible and left me crying for weeks. He was so negative and didn't answer any of the questions...