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  • Advice

    Any one on line from India ... Need address for low vision clinics with aids in India for albinism
    Posted to Forum by rashi2000 on 07-30-2008
  • New PO

    Hey, everbody! I have an appointment for Jathan with his new PO on August 9th. Does anybody have any suggestions on what questions I shoud ask or what I should look for? The first PO that I went to was horrible and left me crying for weeks. He was so negative and didn't answer any of the questions...
    Posted to Forum by Jathan on 07-30-2008
  • Nystagmus?? Please Help!!

    I have recently noticed that Jathan has a constant sweeping motion with his eyes from one side to the other (very frightening for a parent to see). I am assuming that this is the beginning of his Nystagmus. Is this correct? Also, for those of you that have experienced your children doing this, at what...
    Posted to Forum by Jathan on 07-02-2008
  • Re: Hi all

    Actually they are not. I have a hard time with lotion and other moisturizers because I cannot stand theat film like feeling on my hands. Coppertone is also water proff so they work well when you perspire or glow. LOL. When I do wear it and I sweat, I always have a handerkerchief near to wipe because...
    Posted to Forum by erika evans on 06-14-2008
  • Re: Hi all

    Hi back Guadalupe, My name is Erika and my parents lived in Arizon for a couple of year while I stay in school in Calif. Whenever, I wnet to visit and we went out, I used a sunscreen 30 or more. Copperone has a new spray on sunscreen that I love. I used it the past summer while outside during VBS and...
    Posted to Forum by erika evans on 06-14-2008
  • ,What should one do,I want to know which field should i use to make my carrer in,everywhere there is requirement of good eyesight from day to day life to work place.I am 19 years old and confused about my life there is noone to help me out or guide me,so i

    ,What should one do,I want to know which field should i use to make my carrer in,everywhere there is requirement of good eyesight from day to day life to work place.I am 19 years old and confused about my life there is noone to help me out or guide me,so i had no ones example in front of me to fallow...
    Posted to Forum by Mazran on 05-20-2008
  • Macula???

    Has anybody else been told that their child is missing the macula? but that it might develop later? I am confused by this entire concept. Any information would be very helpful. Thanks....
    Posted to Forum by Jathan on 05-16-2008
  • Hats for infants???

    Could somebody please give me some suggestions on where to find hats with bills that are small enough for a newborn? My pediatrician strongly reccomended them but I can't seem to find them anywhere. Thanks for your assistance.
    Posted to Forum by Jathan on 05-15-2008
  • My son was recently dx with Albinism

    My son was born May 2nd 2008 and was dx with Albinism. I am trying to understand and process everything but it seems so confusing. I have all ready had him to a pediatric opthamologist who was not so helpful. He couldn't really tell us much b/c our son is so young. But he didn't give us very...
    Posted to Forum by Jathan on 05-09-2008
  • Three month old daughter w/ oa. Scared to death right now.

    My daughter, Sophie, is three months old. She was diagnosed with nystagmus & ? ocular albinism. I am still in shock stage. I am scared to death of the unknown. The thoughts of something being wrong that mommy can't fix is devistating. My ped. is sending me to a PO but my question to everyone...
    Posted to Forum by angie on 03-21-2008
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