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  • Re: One thing I learned from the Conference

    I was so happy Donna was in the mothers chat with me. The day after we got home from Vegas I called her and go the info sent to my email. That was on Friday and on Monday I went and go Brylie's blood drawn and sent it overnight to Dr. White. He called me the next day and told me it was negative....
    Posted to Forum by BryliesMom on 07-24-2008
  • Re: Disability???

    Hey...Yeah I was there with my mom and sister...it was so much fun...I don't think Brylie will get the disability since her vision isn't really bad now...she does have nystagmus so we will see what they say...I figured it didn't hurt in trying...we drive 2 hours to the doctor and it can get...
    Posted to Forum by BryliesMom on 07-21-2008
  • Re: New Slide Show

    I added Jacob and Frankie to the slide show. It is almost to the end of that second song now. If I add anymore new pics, I suppose I'm going to have to start taking out some of the ones of Lyra. I do have like 3 times as many of her as I do any other child...so I guess that would be the right thing...
    Posted to Forum by MomInKS on 03-09-2008
  • Albinism Awareness Slide Show

    I would like to share my latest slide show with everyone. Perception is Not Reality A BIG Thank You to all of the parents who submitted pictures of their BEAUTIFUL children for me to include. For anyone who didn't get the chance to send me a picture, I can always add more, so feel free to email me...
    Posted to Forum by MomInKS on 01-27-2008
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