NOAH AOC

Hi, my name is Kristin. I am a nursing student at the University of North Carolina. As technology advances, our school has decided (and I more than agree) that it is increasingly imporant for nurses to understand genetics and genomics in today's medical field. As part of a genomics course I am enrolled...

hello. my name is raven (yes, like the bird), and i write fiction. i decided to join this forum because one of the characters i have been working with for some time now happens to have albinism. i am still trying to work out exactly which sort of albinism the character suffers from, but in the meantime...

The 20/20 special was very well done. But I would not have put so much emphasis on entertainers being the only example of albinos being successful. Most of us don't end up as entertainers. I was also sad for the young lady who felt the need to cover her albinism. I do remember the teenage angst but...

I don’t believe I’ve ever mentioned this on this site, but I am now a member of the NOAH Board of Directors. As a board member, one of the projects I’ve been working on is planning a local 1-day mini-conference to be held on on August 8th at the Kansas State School for the Blind. [...

Lisa, It's not possible the your daughter has just Ocular Albinsim because 80% cases of Ocluar Albinism which the gene is on the X Chromsome which means it's X-linked which also means the a female is a carrier anc can only have a son with Ocular Albinism. Chances are your daughter most likely...

I am a Documentary student from Algonquin College in Ottawa, Ontario looking to produce a documentary on albinism, the conditions that arise from it, the myths around it and how it has affected people's lives. I am looking for people with albinism in Ottawa area (people in Toronto and Montreal are...

I was flipping through the September 2008 issue of Travel & Leisure and came across a beatiful woman holding a black hand bag in a Kenneth Cole ad. Click the link (kennethcole.com) below for details about Kenosha Robinson, African American with Albinism. http://www.kennethcole.com/content/index.jsp...

I was so happy Donna was in the mothers chat with me. The day after we got home from Vegas I called her and go the info sent to my email. That was on Friday and on Monday I went and go Brylie's blood drawn and sent it overnight to Dr. White. He called me the next day and told me it was negative....

Hey...Yeah I was there with my mom and sister...it was so much fun...I don't think Brylie will get the disability since her vision isn't really bad now...she does have nystagmus so we will see what they say...I figured it didn't hurt in trying...we drive 2 hours to the doctor and it can get...

I added Jacob and Frankie to the slide show. It is almost to the end of that second song now. If I add anymore new pics, I suppose I'm going to have to start taking out some of the ones of Lyra. I do have like 3 times as many of her as I do any other child...so I guess that would be the right thing...