NOAH AOC

hello. my name is raven (yes, like the bird), and i write fiction. i decided to join this forum because one of the characters i have been working with for some time now happens to have albinism. i am still trying to work out exactly which sort of albinism the character suffers from, but in the meantime...

Hi i am duraipandian from India and i am in my late 20s and i was born with albanism. Now i am going to get married and before that i wanted to know that the generation of mine will have this issue or not. If yes what is the probability for this. Any of the friends knows this or you have the experience...

Hi, i'm doing a report on albinism for my biology class. I know this is a bit of a personal question, but i was wondering if anyone would be willing to provide the approximate total cost of living with albinism from birth to age 21 as well as what was covered by your insurance company and what had...

Her bus arrives home after school one day – Lyra walks in the front door and drops her backpack on the floor. As she’s taking her coat off, I ask her, “How was your day?” “Good” she says…and just before I’m able to ask my next question, she adds, “and...

Hi!I had strabismus, now i have far-sightness,nistagmus and astigmatism.I have red/light-brown/gold hairs .it depends from the light.(http://s56.radikal.ru/i153/0911/f8/894cdeab4474.jpg).i have light skin,i burn on the sun but color of skin transformed into light gold color.(http://s42.radikal.ru/i097...

I may have to switch due to insurance carrier change, I want to make sure I take my son to someone with experience in Albinism/Nystagmus. Any recommendations would be great even if I have to drive a bit. I'm sure I will try to see Dr. Hertle at some point in the next year as well. Thanks! -Jessie

Hello everyone, first want to thank you all for taking the time to post all the useful information on this forum. It has really helped me transition to this new Albinism world! My 3 1/2 month old son Colin was just diagnosed Friday with Ocular Albinism, possibly X chromosome type as well as Nystagmus...

This takes so much less effort than actually WRITING a post. I hope to start writing again soon though. ©2009 Parent of a Child with Albinism. All Rights Reserved..

We are trying to figure out if our one year old daughter has albinism. Our doctors of course are no help. We have had her blood shipped off to boston and it came back inconclusive. basically they are saying they are finding nothing in her genes that says albinism. She has one variant that they dont know...

Yes there is. What I also want to know is why we're considered gifts in Mwanza, Tanzania, Africa.