NOAH AOC

The Albinism Online Community
Welcome to NOAH AOC Sign in | Join | Help
in Search
Ad: Get involved in research

Browse by Tags

All Tags » albinism (RSS)
  • Re: Ocular Albinism and Speech Development ???

    I believe the delay in speech/language development can occur in kids with all types of albinism. Keep in mind, it might not be related to the albinism at all and at 17 months, I think it's really too early to worry. When my daughter was 22 months, she could only say 2 or 3 words other than mama and...
    Posted to Forum by MomInKS on 07-30-2008
  • Re: One thing I learned from the Conference

    The Vice President of the HPS Network, Heather Kirkwood, is a friend of mine. She lives here in my area and did the bowl-a-thon with us the last 2 years. She gave me some more information about the blood test for HPS. Testing for HPS is not yet a genetics-based test because we are certian that not all...
    Posted to Forum by MomInKS on 07-17-2008
  • Re: 12 week old daughter has Ocular Albinism- need advice! :-)

    Hi Liz, My name is Lee and I have oculocutaneous albinism (skin, hair and eyes). Your emotions are normal right now. Despite the nystagmus, she can see you and in her own way is focusing. As she grows, she will learn to control the nystagmus. It is not something that is taught, it is something that happens...
    Posted to Forum by Lee Laughlin on 06-12-2008
  • Families, Albino siblings..... who's holding the current record?!

    Hello there, I am researching Albinism and I'm curious to learn about the current largest albino family in the world. I have found the Guiness World Record entries about the Sesler and the Gaulin kids. But surely there's other numerous albino siblings around right?! Ive read around the forum...
    Posted to Forum by LauraG on 06-10-2008
  • confused :(

    Hey all, I'm a typical 21 year old guy and am just really beginning to learn about my OA. Growing up I was always told I had "albanism" but nobody ever really explained what it was. I just knew that I had bad vision and glasses couldn't correct it, and that my eyes "shaked"...
    Posted to Forum by andrewlambert on 05-13-2008
  • transition lenses???

    Hello everyone! Its been awhile since my last post but I have another delima and need your help. We just took our twins, now 21-months who have OCA2, to their 6-month follow up with the PO. Good news all around, which was great to hear. However, this was our 4th appointment with him, and each time we...
    Posted to Forum by twinmamma on 04-01-2008
  • looking for help

    I am an artist/researcher working on a public awareness project based on the experience of people with Albinism. My project is based on my concerns about how a person can simultaneously be visible and invisible in a society that declares itself multicultural and liberal; and the consequences of the treatment...
    Posted to Forum by maramax54 on 03-15-2008
  • Re: New Slide Show

    I added Jacob and Frankie to the slide show. It is almost to the end of that second song now. If I add anymore new pics, I suppose I'm going to have to start taking out some of the ones of Lyra. I do have like 3 times as many of her as I do any other child...so I guess that would be the right thing...
    Posted to Forum by MomInKS on 03-09-2008
  • Re: New Slide Show

    Thanks Sheri. I just added a pic of a couple more kids. I still get goosebumps everytime I watch it. Mashawna
    Posted to Forum by MomInKS on 03-07-2008
  • Did you go to the Visible Difference exhibition in London?

    I'm a university researcher based in the UK and I'd like to get in touch with people who visited the Visible Difference exhibition at the Hunterian Museum in London. The exhibition ran from October to December 2007. If you were abl to visit the exhibition, please e mail me: c.baker@lancaster...
    Posted to Forum by sc99cab on 03-05-2008
Page 1 of 2 (17 items) 1 2 Next >
Ad: Support NOAH Funding
Add our Google Gadget to your iGoogle page
Add to Google
Powered by Community Server (Commercial Edition), by Telligent Systems