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  • Re: Looking for some guidance now that my daughter is getting older

    Hello, Jane! My name is Cindy, I'm 19 years old, a Sophomore in college and I seem to be in a lot of the same position as your daughter, though I can't say I'm as lucky as her in the vision area (Hello 20/400!) First I'd like to say I had no idea there was a procedure to correct a nystagmus...
    Posted to Forum by cindydindy on 08-14-2010
  • Questions for people with albinism

    Hello everyone, I just had a few questions... Do you have albinism? What kind? What is your name? Where are you from? What are some negative experiences you have had because of your condition? How do you think other people see you? What is one good thing you can say about having albinism? If you could...
    Posted to Forum by afrowarrior on 06-19-2010
  • NON-ALBINO CHILDREN OF PARENTS WITH ALBINISM

    hello NOAH, i believe my perspective is unique as i haven't seen any posts yet related to this subject. i'm a television journalist and am thinking about writing a book and eventually producting a documentary about albinism in the black community. i would love to hear from anyone who would be...
    Posted to Forum by andreaallen on 05-02-2010
  • Tyra show Wednesday: before any attacks start

    Hey, not sure of anyone will be watching Tyra Wednesday, but that is when some of the albinism discussion is supposed to air, with Diandra Forrest and Saun Ross. I'm not sure how much, if any, will be included, but they also filmed me on there (the one in the red dress, if you see it) and I talk...
    Posted to Forum by Bestever on 04-20-2010
  • 3rd Quarter Preschool Progress

    The information below is from Lyra’s 3rd quarter progress reports from the private preschool she attends. The first paragraph is from her braille instructor and the others are from her regular classroom teacher. I am quite pleased with their reports. :D Lyra uses a braillewriter adapted with unifix...
    Posted to Weblog by Anonymous on 04-01-2010
  • researching for writing a fictional character

    hello. my name is raven (yes, like the bird), and i write fiction. i decided to join this forum because one of the characters i have been working with for some time now happens to have albinism. i am still trying to work out exactly which sort of albinism the character suffers from, but in the meantime...
    Posted to Forum by MaryHoliday on 12-27-2009
  • Anybody who crossed this kind of stituation

    Hi i am duraipandian from India and i am in my late 20s and i was born with albanism. Now i am going to get married and before that i wanted to know that the generation of mine will have this issue or not. If yes what is the probability for this. Any of the friends knows this or you have the experience...
    Posted to Forum by catchdurai on 12-17-2009
  • AP biology report on albinism...help?

    Hi, i'm doing a report on albinism for my biology class. I know this is a bit of a personal question, but i was wondering if anyone would be willing to provide the approximate total cost of living with albinism from birth to age 21 as well as what was covered by your insurance company and what had...
    Posted to Forum by xsoccerswmchicax on 12-13-2009
  • Can’t I Just Get a CHART?

    Her bus arrives home after school one day – Lyra walks in the front door and drops her backpack on the floor. As she’s taking her coat off, I ask her, “How was your day?” “Good” she says…and just before I’m able to ask my next question, she adds, “and...
    Posted to Weblog by Anonymous on 12-10-2009
  • h!i have question ^_^which type of Albinism can i have?

    Hi!I had strabismus, now i have far-sightness,nistagmus and astigmatism.I have red/light-brown/gold hairs .it depends from the light.(http://s56.radikal.ru/i153/0911/f8/894cdeab4474.jpg).i have light skin,i burn on the sun but color of skin transformed into light gold color.(http://s42.radikal.ru/i097...
    Posted to Forum by Rus_Albino on 11-22-2009
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