NOAH AOC

I believe the delay in speech/language development can occur in kids with all types of albinism. Keep in mind, it might not be related to the albinism at all and at 17 months, I think it's really too early to worry. When my daughter was 22 months, she could only say 2 or 3 words other than mama and...

The Vice President of the HPS Network, Heather Kirkwood, is a friend of mine. She lives here in my area and did the bowl-a-thon with us the last 2 years. She gave me some more information about the blood test for HPS. Testing for HPS is not yet a genetics-based test because we are certian that not all...

Hi Liz, My name is Lee and I have oculocutaneous albinism (skin, hair and eyes). Your emotions are normal right now. Despite the nystagmus, she can see you and in her own way is focusing. As she grows, she will learn to control the nystagmus. It is not something that is taught, it is something that happens...

Hello there, I am researching Albinism and I'm curious to learn about the current largest albino family in the world. I have found the Guiness World Record entries about the Sesler and the Gaulin kids. But surely there's other numerous albino siblings around right?! Ive read around the forum...

Hey all, I'm a typical 21 year old guy and am just really beginning to learn about my OA. Growing up I was always told I had "albanism" but nobody ever really explained what it was. I just knew that I had bad vision and glasses couldn't correct it, and that my eyes "shaked"...

Hello everyone! Its been awhile since my last post but I have another delima and need your help. We just took our twins, now 21-months who have OCA2, to their 6-month follow up with the PO. Good news all around, which was great to hear. However, this was our 4th appointment with him, and each time we...

I am an artist/researcher working on a public awareness project based on the experience of people with Albinism. My project is based on my concerns about how a person can simultaneously be visible and invisible in a society that declares itself multicultural and liberal; and the consequences of the treatment...

I added Jacob and Frankie to the slide show. It is almost to the end of that second song now. If I add anymore new pics, I suppose I'm going to have to start taking out some of the ones of Lyra. I do have like 3 times as many of her as I do any other child...so I guess that would be the right thing...

Thanks Sheri. I just added a pic of a couple more kids. I still get goosebumps everytime I watch it. Mashawna

I'm a university researcher based in the UK and I'd like to get in touch with people who visited the Visible Difference exhibition at the Hunterian Museum in London. The exhibition ran from October to December 2007. If you were abl to visit the exhibition, please e mail me: c.baker@lancaster...