NOAH AOC

Hi Liz, My name is Lee and I have oculocutaneous albinism (skin, hair and eyes). Your emotions are normal right now. Despite the nystagmus, she can see you and in her own way is focusing. As she grows, she will learn to control the nystagmus. It is not something that is taught, it is something that happens...

Hello there, I am researching Albinism and I'm curious to learn about the current largest albino family in the world. I have found the Guiness World Record entries about the Sesler and the Gaulin kids. But surely there's other numerous albino siblings around right?! Ive read around the forum...

My baby girl, Sadie, was diagnosed with Ocular Albinism at 6 weeks. She is now 4 months old and had the diagnoses confirmed last week. Our eye doctor has been practicing for over 20 years and has never experienced a case like ours so he has refered us to Children's Hospital in Little Rock. We are...

Hello Everyone, I am Amy and I am new to the NOAH website as well as the forums. I have a 7 year old daughter who does not have albinism and a three year old son who was just diagnosed with OCA 2. He was diagnosed with a few different vision problems at a very young age and has worn glasses since, but...

I am an award-winning photographer who creating a new series on 6 rare genetic diseases; the hope being to promote awareness and funding for these afflictions as well helping people understand that these children can be talked to, played with and want very much to interact with new people. I want very...

I'm new to this forum, but I had to reply as I know quite a bit about growing up albino. From the perspective of a child, the first few yrs, I didn't notice. My parents loved me, nothing else mattered. But then I hit school. Children tend to be cruel to anyone who is different. An albino child, a mentally...