NOAH AOC

It’s a new school year and Trisha’s in third grade. So far, we’ve had a good experience with the district and a great experience with the teachers. From the get go, I’ve said that third grade would be a pivotal year. The print gets smaller and the expectations get higher. Third grade is also the year...

Hello there, I am researching Albinism and I'm curious to learn about the current largest albino family in the world. I have found the Guiness World Record entries about the Sesler and the Gaulin kids. But surely there's other numerous albino siblings around right?! Ive read around the forum...

Hello everyone! Its been awhile since my last post but I have another delima and need your help. We just took our twins, now 21-months who have OCA2, to their 6-month follow up with the PO. Good news all around, which was great to hear. However, this was our 4th appointment with him, and each time we...

Thanks Sheri. I just added a pic of a couple more kids. I still get goosebumps everytime I watch it. Mashawna

Yesterday my daughter Trisha and I bowled as part of Team New Hampshire’s 2008 Bowlathon. It is always fun to make new friends and catch up with old ones (even if the little girl you met when she was four is now a freshman in high school!) We had 17 people from 5 families at our gathering. I want to...

I would like to share my latest slide show with everyone. Perception is Not Reality A BIG Thank You to all of the parents who submitted pictures of their BEAUTIFUL children for me to include. For anyone who didn't get the chance to send me a picture, I can always add more, so feel free to email me...

Anyone who wants to talk to me . im new to all this i have a little girl wth albisim. jo

Hello everyone! Sorry its been awhile since my last (first) post! September was CRAZY! I don't know where it went! I think the main reason it seemed to fly by was that at the end of August, our PO said the big S word - "Surgery". Our little Rachel needed to have surgery for the esotropia...

I have a first grader with OA. The school is being resistent to an IEP for our daughter because she functions so well. In actuality she adapts so well and they see this as functioning well. The reply we were given last year was, after visual observation it was not necessary. They told us it is an education...

My baby girl, Sadie, was diagnosed with Ocular Albinism at 6 weeks. She is now 4 months old and had the diagnoses confirmed last week. Our eye doctor has been practicing for over 20 years and has never experienced a case like ours so he has refered us to Children's Hospital in Little Rock. We are...