NOAH AOC

My baby girl, Sadie, was diagnosed with Ocular Albinism at 6 weeks. She is now 4 months old and had the diagnoses confirmed last week. Our eye doctor has been practicing for over 20 years and has never experienced a case like ours so he has refered us to Children's Hospital in Little Rock. We are...

We are looking for Organization or Events for albino children here in California. Can you please provide some private elmentary schools, organization,service references or families emails that we may contact with albino children. To get our children involved academically and activities with other children...

My OCA1 son Thor will be 3 in September. Not surprisingly, eye contact and visual engagement during communication is not a regular part of his repertoire, since there's no positive feedback from such with low vision. I've taught him to wave (rather perfunctorily) on command, but it's not...