NOAH AOC

Hi Liz, My name is Lee and I have oculocutaneous albinism (skin, hair and eyes). Your emotions are normal right now. Despite the nystagmus, she can see you and in her own way is focusing. As she grows, she will learn to control the nystagmus. It is not something that is taught, it is something that happens...

My baby girl, Sadie, was diagnosed with Ocular Albinism at 6 weeks. She is now 4 months old and had the diagnoses confirmed last week. Our eye doctor has been practicing for over 20 years and has never experienced a case like ours so he has refered us to Children's Hospital in Little Rock. We are...