NOAH AOC

This past spring, our family attended an event at our local Children’s Center for the Visually Impaired called Literacy Lollapalooza. This all day workshop type event included a variety of sessions designed to promote literacy in children with visual impairments. One of the activities that was...

We recently updated Lyra’s speech and language goals on her IFSP. Her speech therapist has been coming weekly for the last 12 weeks. She’s doing great and we’re considering changing her sessions to biweekly instead of weekly. She went above and beyond meeting her first set of goals...

Hi Liz, My name is Lee and I have oculocutaneous albinism (skin, hair and eyes). Your emotions are normal right now. Despite the nystagmus, she can see you and in her own way is focusing. As she grows, she will learn to control the nystagmus. It is not something that is taught, it is something that happens...

Hi Megan, I'm glad things are looking better as far as getting the EI services set up. I was going to tell you that you don't need a diagnosed visual acuity or even a range for your child to be eligible for EI services. Your daughter doesn't even need to have a developmental delay to receive...

My baby girl, Sadie, was diagnosed with Ocular Albinism at 6 weeks. She is now 4 months old and had the diagnoses confirmed last week. Our eye doctor has been practicing for over 20 years and has never experienced a case like ours so he has refered us to Children's Hospital in Little Rock. We are...

Are any of you receiving early intervention? If so, what is exactly done for your child? In SC my child qualifies for Babynet (SC EI) due to his diagnosis of albinism but I really started it more for his developmental delays. He is getting ready to start therapies but I have a question regarding his...