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  • 4 mo. old daughter with ocular albinism. Please help!

    My baby girl, Sadie, was diagnosed with Ocular Albinism at 6 weeks. She is now 4 months old and had the diagnoses confirmed last week. Our eye doctor has been practicing for over 20 years and has never experienced a case like ours so he has refered us to Children's Hospital in Little Rock. We are...
    Posted to Forum by MommyLAS on 09-09-2007
  • Re: teaching visual "engagement"

    I have albinism and the associated nystagmus, It, and the ability and desire to make eye contact, improved greatly with age (I'm 37 now). It's actually easier for me to concentrate when I'm NOT looking someone in the eye, so only do so when in professional settings. As others with albinism...
    Posted to Forum by Julieanne on 08-15-2007
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