NOAH AOC

Hi, I have a four and 1/2 month old with OCA. He has blue eyes and his opthalmologist says the eyes are fairly well pigmented. He is only just starting to develop Nystagmus over the last few weeks. We don't see the opthalmologist until 17th December. My son still doesn't appear to focus on things...

My baby girl, Sadie, was diagnosed with Ocular Albinism at 6 weeks. She is now 4 months old and had the diagnoses confirmed last week. Our eye doctor has been practicing for over 20 years and has never experienced a case like ours so he has refered us to Children's Hospital in Little Rock. We are...

I have albinism and the associated nystagmus, It, and the ability and desire to make eye contact, improved greatly with age (I'm 37 now). It's actually easier for me to concentrate when I'm NOT looking someone in the eye, so only do so when in professional settings. As others with albinism...