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  • I don't know where to begin... my son was just diagnosed.

    Hello everyone, first want to thank you all for taking the time to post all the useful information on this forum. It has really helped me transition to this new Albinism world! My 3 1/2 month old son Colin was just diagnosed Friday with Ocular Albinism, possibly X chromosome type as well as Nystagmus...
    Posted to Forum by Colinsmommy on 11-08-2009
  • Re: New Diagnosis and looking for advice

    Svenn, I was in the same boat as you 4 years ago. It did take some time to get the diagnosis, paperwork and help. I put together this free website, so check it out while you are waiting: http//:www.mothersplayground.com. There are things you can do right now to make your baby's life easier. We have...
    Posted to Forum by Tara Wooters on 06-28-2009
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