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  • Conference Advice

    Hi, We have fraternal twin girls that are 4 months old this week. One of our girls was diagnosed with OA at 2 months. We are struggling with the decision to make the trip to the conference. We live in Los Angeles and we're not sure if my husband can go because of work and we are debating the benefits...
    Posted to Forum by shainashapiro on 06-14-2010
  • Re: Our first PO visit

    PO is a pediatric opthalmalogist. My eye doc referred me to one after he confirmed my son's OA. Did yours give you a referral? This forum is great with helping out with any questions and concerns you might have. My son is now 6 months and has nystagmus along with the OA and I have learned a lot here...
    Posted to Forum by tabi on 03-19-2010
  • I don't know where to begin... my son was just diagnosed.

    Hello everyone, first want to thank you all for taking the time to post all the useful information on this forum. It has really helped me transition to this new Albinism world! My 3 1/2 month old son Colin was just diagnosed Friday with Ocular Albinism, possibly X chromosome type as well as Nystagmus...
    Posted to Forum by Colinsmommy on 11-08-2009
  • Re: New Diagnosis and looking for advice

    Svenn, I was in the same boat as you 4 years ago. It did take some time to get the diagnosis, paperwork and help. I put together this free website, so check it out while you are waiting: http//:www.mothersplayground.com. There are things you can do right now to make your baby's life easier. We have...
    Posted to Forum by Tara Wooters on 06-28-2009
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