NOAH AOC

Hi, We have fraternal twin girls that are 4 months old this week. One of our girls was diagnosed with OA at 2 months. We are struggling with the decision to make the trip to the conference. We live in Los Angeles and we're not sure if my husband can go because of work and we are debating the benefits...

PO is a pediatric opthalmalogist. My eye doc referred me to one after he confirmed my son's OA. Did yours give you a referral? This forum is great with helping out with any questions and concerns you might have. My son is now 6 months and has nystagmus along with the OA and I have learned a lot here...

Hello everyone, first want to thank you all for taking the time to post all the useful information on this forum. It has really helped me transition to this new Albinism world! My 3 1/2 month old son Colin was just diagnosed Friday with Ocular Albinism, possibly X chromosome type as well as Nystagmus...

Svenn, I was in the same boat as you 4 years ago. It did take some time to get the diagnosis, paperwork and help. I put together this free website, so check it out while you are waiting: http//:www.mothersplayground.com. There are things you can do right now to make your baby's life easier. We have...