NOAH AOC

My baby girl, Sadie, was diagnosed with Ocular Albinism at 6 weeks. She is now 4 months old and had the diagnoses confirmed last week. Our eye doctor has been practicing for over 20 years and has never experienced a case like ours so he has refered us to Children's Hospital in Little Rock. We are...

My OCA1 son Thor will be 3 in September. Not surprisingly, eye contact and visual engagement during communication is not a regular part of his repertoire, since there's no positive feedback from such with low vision. I've taught him to wave (rather perfunctorily) on command, but it's not...